RE: Docket No. FDA-2018-N-0410 Dear FDA Advisory Committee: Founded in 1977, the Les Turner ALS Foundation is the oldest independent ALS group in the country. For 45 years, it has been our mission to provide the most comprehensive care and …
Response to NINDS Request for Information on ALS Strategic Plan
February 11, 2022 Dear NINDS, As we set our sights on shaping the strategic future of ALS research, we thank you for the opportunity to identify key research and priorities at NIH and beyond. We also recognize …
Faces of ALS: Remembering Marshall Krolick – One of the Foundation’s Founding Members
When Marshall Krolick passed away in February, the Les Turner ALS Foundation lost one of its longest-standing family members and biggest supporters. As a close friend of Les Turner, for whom the Foundation is named, Marshall was at the hospital …
May 2021 Events eNews
Strike Out ALS 5k and 1 Mile Registration Open Summer is just around the corner and that means our Strike Out ALS 5k and 1 Mile Run, Walk & Roll is too! Just like last year, our virtual format offers …
May 2021 Foundation eNews
How Do You #TakeABreath? Breathing. It’s something that can easily be taken for granted. But for many people living with ALS, breathing can often be a daily challenge. Our #TakeABreath campaign during ALS Awareness Month in May allows you to share …
Faces of ALS: A New Addition to our Support Services Committee
For over 30 years, Cheryl Gallagher traveled the world as a flight attendant for United Airlines. From India to New Zealand, and Cambodia to Vietnam, she reveled in the opportunity to explore new places, take in fresh perspectives and immerse …
April 2021 Events eNews
#TakeaBreath During ALS Awareness Month in May Be a part of our new #TakeaBreath Campaign this coming May for ALS Awareness Month to honor and recognize the resiliency of people with ALS, for whom breathing can be a daily challenge. …
April 2021 Foundation eNews
Grief & Loss in Children and Youth in Families with ALS: April ALS Learning Series Last month, our ALS Learning Series webinar focused on talking with children about ALS. This Thursday, April 8 at 12pm CST, Dr. Melinda Kavanaugh returns …
Tagging So Others Can Take a Breath
May is ALS Awareness Month. Every year, members of our Les Turner ALS family volunteer in our annual Tag Days Drive to spread the message of hope and help and raise funds to support people living with ALS and their …
March 2021 Events eNews
Last Call for Gourmet Dinner Delivery with our Hope Through Caring Gala The 2021 Virtual Hope Through Caring Gala is less than two weeks away on Saturday, March 20! Don’t miss out on a spectacular evening to create a world …