Below you'll find a list of all posts that have been categorized as “Advocacy”
In response to a recent congressional hearing focused on the slow pace of drug approvals for neurological diseases, Les Turner ALS Foundation’s CEO Andrea Pauls Backman spoke with Suz Redfearn, a reporter for FDA News. Andrea was quoted extensively in …
When Marshall Krolick passed away in February, the Les Turner ALS Foundation lost one of its longest-standing family members and biggest supporters. As a close friend of Les Turner, for whom the Foundation is named, Marshall was at the hospital …
How Do You #TakeABreath? Breathing. It’s something that can easily be taken for granted. But for many people living with ALS, breathing can often be a daily challenge. Our #TakeABreath campaign during ALS Awareness Month in May allows you to share …
As someone living with ALS or in contact with someone living with ALS, you should always take special precautions to safeguard your health and the health of those around you. People living with ALS are at an increased risk of respiratory problems …
For over 30 years, Cheryl Gallagher traveled the world as a flight attendant for United Airlines. From India to New Zealand, and Cambodia to Vietnam, she reveled in the opportunity to explore new places, take in fresh perspectives and immerse …
Grief & Loss in Children and Youth in Families with ALS: April ALS Learning Series Last month, our ALS Learning Series webinar focused on talking with children about ALS. This Thursday, April 8 at 12pm CST, Dr. Melinda Kavanaugh returns …
May is ALS Awareness Month. Every year, members of our Les Turner ALS family volunteer in our annual Tag Days Drive to spread the message of hope and help and raise funds to support people living with ALS and their …
Newly Discovered Compound Found to Reverse ALS Neuron Damage «We have identified the first compound that improves the health of upper motor neurons that become diseased,” shares Hande Ozdinler, PhD, senior author of the study along with Richard B. Silverman, …
When Jonathan Brent, MD, PhD, asks his ALS patients what their goals are, the answer is almost always the same: to find a cure for ALS. “What motivates me,” says Dr. Brent, “is how I can make true on that …
Therapeutic Potential for New ALS Drug According to a recent study published in JAMA Neurology, ezogabine, an experimental drug, is found to have potential therapeutic possibilities for ALS treatment. «Most importantly, ezogabine decreased cortical and spinal motor neuron excitability in …
