Below you'll find a list of all posts that have been tagged as “les turner als center at northwestern medicine”
Rob Faulstich’s advocacy journey began when his sister-in-law, Diane Costello, was diagnosed with ALS in late 2018. “Prior to Diane’s diagnosis, she had difficulty walking and was tripping frequently going up stairs and curbs,” says Rob. “When she sought treatment …
As a lifelong baseball fan, Vince Foglia knew about ALS after having heard Lou Gehrig’s famous speech announcing that he had the disease. “ALS had always grabbed my attention because it is a cruel disease for which there is no …
Andrea Pauls Backman, chief executive officer of the Les Turner ALS Foundation, has been invited by the U.S. National Institute of Neurological Disorders and Stroke (NINDS) to serve as a working group member on its ALS Strategic Planning Team and …
New results from the Phase 3 clinical trial of tofersen, a drug in development by Biogen, have shown promise in treatment of superoxide dismutase 1 (SOD1) amyotrophic lateral sclerosis (ALS). According to the 12-month data, earlier initiation of treatment with …
As connecting fibers between motor neurons, axons help deliver vital messages between the brain and the spinal cord. For people living with ALS, deteriorating axons cause that connection to break, contributing to paralysis and death. Early research on NU-9, an …
This story has been updated with a link to the informational webinar about the new medication. The U.S. Food and Drug Administration has approved RADICAVA ORS®, an oral form of edaravone that reports the same efficacy as RADICAVA® for intravenous infusion. …
Newly Discovered Compound Found to Reverse ALS Neuron Damage «We have identified the first compound that improves the health of upper motor neurons that become diseased,” shares Hande Ozdinler, PhD, senior author of the study along with Richard B. Silverman, …
When Jonathan Brent, MD, PhD, asks his ALS patients what their goals are, the answer is almost always the same: to find a cure for ALS. “What motivates me,” says Dr. Brent, “is how I can make true on that …
Therapeutic Potential for New ALS Drug According to a recent study published in JAMA Neurology, ezogabine, an experimental drug, is found to have potential therapeutic possibilities for ALS treatment. «Most importantly, ezogabine decreased cortical and spinal motor neuron excitability in …
ALS Disability Insurance Access Act Signed into Law We are excited to announce that on December 22, the ALS Disability Insurance Access Act was signed into law, which waives the mandatory five-month waiting period for ALS patients to receive Social …
