Next week, the Les Turner ALS Foundation will welcome its new CEO, Laura Freveletti. I’m thrilled for Laura and the Foundation and will work closely with her, our board, staff and our many partners to help orient her over the …
Oral Testimony to the FDA Advisory Committee on the Approval of tofersen
Delivered by Lauren Webb, LCSW, Chief Advocacy and Outreach Officer of the Les Turner ALS Foundation. See also remarks by Senda Ajroud-Driss, MD, Director of the Lois Insolia ALS Clinic at the Les Turner ALS Center at Northwestern Medicine. Open …
March 2023 Foundation eNews
Foundation News Tune in tomorrow: FDA meeting on tofersen The U.S. Food and Drug Administration (FDA) will hold an advisory committee meeting on Wednesday, March 22 to review Biogen’s New Drug Application for accelerated approval of tofersen, a treatment for …
Les Turner ALS Foundation Names Laura Freveletti as New Chief Executive Officer
The Les Turner ALS Foundation announced today that Laura Freveletti has been appointed Chief Executive Officer (CEO), effective April 10, 2023. Freveletti succeeds Andrea Pauls Backman, who will step down after eight years of service as CEO. “We are thrilled …
March 2023 Foundation eNews
Foundation News FDA Advisory Committee meeting on tofersen, an SOD1-ALS treatment set for March 22 The U.S. Food and Drug Administration (FDA) will hold an advisory committee meeting on March 22 to review Biogen’s New Drug Application (NDA) for accelerated …
February 2023 Foundation eNews
Foundation News Calming the destructive cells of ALS One of the reasons that ALS can progress quickly is that certain types of cells in the human body will attack diseased upper motor neurons, which are needed to initiate movement. Once …
February 2023 Foundation eNews
Foundation News Place your bids to help find a cure for ALS Let’s get ready to bid! Online bidding opens Feb. 15 for the Hope Through Caring Gala’s silent auction, with over 150 items including travel experience packages with resort …
January 2023 Foundation eNews
Foundation News Mature ‘lab grown’ neurons hold promise for ALS and other neurodegenerative diseases Researchers at the Les Turner ALS Center at Northwestern Medicine and Northwestern University have created the first highly mature neurons from human induced pluripotent stem cells (iPSCs), …
January 2023 Foundation eNews
Foundation News Thank you We can’t thank you enough for your generosity during our end of year fundraising campaign. Your donations are making a profound impact not only on the lives of those living with ALS and their families, but …
December 2022 Foundation eNews
Foundation News Now is the time When a family is dealing with an ALS diagnosis, children are often more aware of what is going on than parents may realize. They can sense when a family member is stressed, and many …
