Below you'll find a list of all posts that have been tagged as “ALS Advocacy”
En el corazón de Glenview, Illinois, una tradición extraordinaria ha crecido durante los últimos 25 años. Los voluntarios detrás de esta campaña comunitaria no solo han recaudado fondos valiosos para la atención e investigación del ELA, sino que también han …
Jessica Morris always knew there was a possibility that she might carry the SOD1-ALS gene and eventually get ALS, but she never dwelled on it, keeping busy with her three children – Aidan, Christopher and Mia. In 2020, she began …
Watch our oral testimony at the FDA Advisory Committee meeting on March 22, 2023. We are grateful to the FDA Advisory Committee for reviewing the evidence, listening to the ALS community and voting to recommend accelerated approval of tofersen for …
Jayanthy Thiagarajah was a fiercely independent woman and a devoted grandmother. In early 2021, having recently lost her husband, Jayanthy was still in mourning when she took a couple of nasty falls that required medical attention. She lived in Boston, …
RE: FDA-2022-N-0691 Estimado Comité Asesor de la FDA: Le escribimos para expresar nuestro firme apoyo a la aprobación de tofersen bajo el Programa de Aprobación Acelerada de la FDA. Nuestra organización tiene una larga trayectoria en la investigación científica del …
Chaunelle Caver-Perkins and her family will be among the guests at the 35th annual Hope Through Caring Gala this Saturday, Feb. 18. You can support the ALS research, education and clinical care described below by participating in our silent auction. …
En 2017, Brian y Sandra estaban construyendo su vida juntos. Se conocieron mientras trabajaban en la campaña de Obama en 2008 y más tarde trabajaron en la Casa Blanca, a pocos metros de distancia. Ambos estaban enfocados en el servicio …
Please join us at the Hope Through Caring Gala on Saturday, Feb. 18, where Ken and his wife Ann, award honorees Brian Wallach & Sandra Abrevaya and First Bank Chicago, and people living with ALS will be our guests of …
Tyler Gaetano’s mother Vera, a Navy veteran, worked in the research department at the VA Hospital in West Haven, CT. Because she had been experiencing slurring of her speech, she decided to seek medical advice. Due to her history of …
Navy veteran Jim Schlader, his wife Sue, and their neighbor Larry Nieman have lived next door to each other for six years. During that time, they have developed a friendship that has become more like family. “Jim and Sue have …
