An ALS diagnosis is difficult to process. People often feel shocked and isolated by the news, whether the diagnosis was for themselves or a family member. It’s hard to move forward or figure out what comes next. “For many people, …
May 2023 Foundation eNews
ALS Awareness Month: Take action! May is ALS Awareness Month, a terrific opportunity to share your commitment to ALS care and research with friends and colleagues. All month, we’ll be sharing ideas to help you make an impact and highlighting people …
Illinois proclama mayo el mes de concientización para ELA, reconoce Les Turner ALS Foundation
El gobernador J.B. Pritzker ha proclamado mayo como Mes de Concientización sobre la ELA en el estado de Illinois, destacando la atención y el apoyo que la Fundación Les Turner ALS brinda a las personas que viven con ELA y …
Introducing My ALS Decision Tool™ on Genetic Testing for People Living with ALS
Launching today, the new My ALS Decision Tool™ on Genetic Testing is the first tool of its kind in the U.S. that focuses on genetic testing for anyone with ALS. It is designed to help people learn more about treatment options, …
La FDA aprueba tofersen (Qalsody™) para el tratamiento de SOD1-ELA
Nos complace que la FDA haya otorgado la aprobación acelerada a tofersen para el tratamiento de SOD1-ELA. Como el primer tratamiento aprobado por la FDA que aborda una causa genética de la ELA, este es un momento histórico para la …
April 2023 Foundation eNews
Foundation News The first ALS Walk for Life team to register is… We are so excited to be back at Soldier Field for the ALS Walk for Life on Saturday, Sept 23! Congratulations to Hursh Power for being the first team to sign up …
April 2023 Foundation eNews
Foundation News Note from the CEO Next week, the Les Turner ALS Foundation will welcome its new CEO, Laura Freveletti. I’m thrilled for Laura and the Foundation and will work closely with her, our board, staff and our many partners to …
Note from the CEO
Next week, the Les Turner ALS Foundation will welcome its new CEO, Laura Freveletti. I’m thrilled for Laura and the Foundation and will work closely with her, our board, staff and our many partners to help orient her over the …
Faces of ALS: Living life to the fullest
Jessica Morris always knew there was a possibility that she might carry the SOD1-ALS gene and eventually get ALS, but she never dwelled on it, keeping busy with her three children – Aidan, Christopher and Mia. In 2020, she began …
FDA Advisory Committee Recommends Accelerated Approval of tofersen
Watch our oral testimony at the FDA Advisory Committee meeting on March 22, 2023. We are grateful to the FDA Advisory Committee for reviewing the evidence, listening to the ALS community and voting to recommend accelerated approval of tofersen for …
