Foundation News ALS Walk for Life, Saturday, September 24! If this is your first ALS Walk for Life, you’re not alone. Suzanne will be participating in the Walk for the first time – and walking in memory of her …
Submit Comments to FDA Advisory Committee on AMX0035 by August 23
The U.S. Food and Drug Administration (FDA) will hold a second public advisory committee meeting on September 7, 2022 to discuss new data about the safety and efficacy of AMX0035, a new treatment for ALS from Amylyx Pharmaceuticals. Following this …
July 2022 Foundation eNews
Foundation News The Foundation represents the European Network to Cure ALS (ENCALS) In June, our CEO, Andrea Pauls Backman, attended the European Network to Cure ALS (ENCALS) conference in Edinburgh, Scotland, along with 650 ALS/MND researchers, patients, and advocates. …
June 2022 Events eNews
Event News Welcome New Strike Out Teams! One thing we look forward to at our community events is seeing all the new faces who get involved every year! We’re inspired by meeting the people who participate and form ambitious, dedicated …
June 2022 Foundation eNews
Foundation News The 34th Annual Hope Through Caring Gala: Reunited and it feels so good! Through your generous donations, we raised nearly $550,000 to support research, clinical trials, and, most of all, personalized care for people living with ALS. …
May 2022 Foundation eNews
Foundation News Hope Through Caring Gala – Last Chance to Purchase Tickets! We’re less than three weeks away from the Hope Through Caring Gala! We’re excited to celebrate with the ALS community and honor three incredible individuals for their …
April 2022 Foundation eNews
Foundation News Historic FDA Advisory Committee On Wednesday, March 30, an FDA Advisory Committee voted 6 to 4 that the current data on Amylyx Pharmaceuticals’ investigational treatment AMX0035 does not support it as an effective treatment for ALS. While …
Faces of ALS: Joshua Cohen and Justin Klee – ALS Innovators and Advocates at Amylyx Pharmaceuticals, Inc.
At this year’s Hope Through Caring Gala on May 21, we are proud to present the Harvey and Bonny Gaffen Advancements in ALS Award to two innovators and longtime advocates of ALS – Joshua Cohen and Justin Klee, co-founders of …
March 2022 Foundation eNews
Foundation News Celebrating 45 Years! This year, we honor the vision of our founders who, 45 years ago, established a foundation to fund ALS research in honor of their friend and family member, Les Turner, a young Chicago businessman …
February 2022 Foundation eNews
Foundation News New Date for the Hope Through Caring Gala! Join us in-person (or virtually) on our new date, Saturday, May 21, for our annual Hope Through Caring Gala at the Radisson Blu Aqua Hotel in Chicago. Our honorees …
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