Victor was 14 years old when his father, an avid marathon runner, was diagnosed with ALS. To this day, he remembers how much the support his family received from the Les Turner ALS Foundation meant to them. “Anyone who is …
November 2022 Foundation eNews
Foundation News Grants that make a difference The Les Turner ALS Foundation offers several grant programs to help provide financial assistance, independence and empowerment for people living with ALS. In 2022, we will have funded nearly 80 grants – made possible …
Faces of ALS: A true brotherhood
Jim Thew joined the Navy in 1991 and was stationed as an aircraft mechanic at the Naval Air Facility Atsugi in Ayase, Kanagawa, Japan, where he met his wife, Kumiko. In 1999, they moved to Illinois to take care of …
November 2022 Foundation eNews
Foundation News Join the ALS research conversation on Nov. 7! The Les Turner Symposium on ALS brings together leading ALS researchers, clinicians, and most importantly, people living with ALS and their families. Not only does the symposium provide the latest …
Faces of ALS: Raising his voice in advocacy for ALS
Rob Faulstich’s advocacy journey began when his sister-in-law, Diane Costello, was diagnosed with ALS in late 2018. “Prior to Diane’s diagnosis, she had difficulty walking and was tripping frequently going up stairs and curbs,” says Rob. “When she sought treatment …
October 2022 Foundation eNews
Foundation News Register for NINDS ALS Strategic Planning Workshop Tomorrow, the draft of the National Institute of Neurological Disorders and Stroke (NINDS) ALS Strategic Plan, is being made available to the public. The Les Turner ALS Foundation has been an …
Faces of ALS: Finding new joy following an ALS diagnosis
Tony Caruso was a busy OB-GYN who delivered hundreds of babies each year. So, it was no surprise when he began to notice symptoms of what he assumed was carpal tunnel syndrome. “I had these symptoms on and off for …
October 2022 Foundation eNews
Foundation News The 2022 ALS Walk for Life was a success because of you! The 21st annual ALS Walk for Life was a huge success. And we have the photos – and figures – to prove it. We loved seeing …
Donor Spotlight: Foglia Family Foundation
As a lifelong baseball fan, Vince Foglia knew about ALS after having heard Lou Gehrig’s famous speech announcing that he had the disease. “ALS had always grabbed my attention because it is a cruel disease for which there is no …
Faces of ALS: Channeling Mom’s Positivity in the Face of Familial ALS
As a healthcare worker, Tina cared for people diagnosed with ALS, including her mother. Prior to her mom’s passing in 2018, Tina started to experience symptoms that were eerily familiar. “Towards the end of my mother’s battle with ALS, I began …
