Tag Archive

  Foundation News The Foundation represents the European Network to Cure ALS (ENCALS) In June, our CEO, Andrea Pauls Backman, attended the European Network to Cure ALS (ENCALS) conference in Edinburgh, Scotland, along with 650 ALS/MND researchers, patients, and advocates. …

  Event News Welcome New Strike Out Teams! One thing we look forward to at our community events is seeing all the new faces who get involved every year! We’re inspired by meeting the people who participate and form ambitious, dedicated …

  Foundation News The 34th Annual Hope Through Caring Gala: Reunited and it feels so good! Through your generous donations, we raised nearly $550,000 to support research, clinical trials, and, most of all, personalized care for people living with ALS. …

  Foundation News Hope Through Caring Gala – Last Chance to Purchase Tickets! We’re less than three weeks away from the Hope Through Caring Gala! We’re excited to celebrate with the ALS community and honor three incredible individuals for their …

  Foundation News Historic FDA Advisory Committee On Wednesday, March 30, an FDA Advisory Committee voted 6 to 4 that the current data on Amylyx Pharmaceuticals’ investigational treatment AMX0035 does not support it as an effective treatment for ALS. While …

  Foundation News Celebrating 45 Years! This year, we honor the vision of our founders who, 45 years ago, established a foundation to fund ALS research in honor of their friend and family member, Les Turner, a young Chicago businessman …

  Foundation News New Date for the Hope Through Caring Gala! Join us in-person (or virtually) on our new date, Saturday, May 21, for our annual Hope Through Caring Gala at the Radisson Blu Aqua Hotel in Chicago. Our honorees …

    Thank You! Because of you, in 2021, we made amazing strides in ALS research, care, and education. We’ve been able to expand our reach and our support to people living with ALS and their families. Your generous donations …