Below you'll find a list of all posts that have been tagged as “als community”
Wendell Meyer enjoyed gardening, tackling household projects and being active in his church. By profession, he worked as a business analyst at the American Medical Association. When he began to rapidly lose weight, he decided to seek out answers with …
Victor was 14 years old when his father, an avid marathon runner, was diagnosed with ALS. To this day, he remembers how much the support his family received from the Les Turner ALS Foundation meant to them. “Anyone who is …
Foundation News Grants that make a difference The Les Turner ALS Foundation offers several grant programs to help provide financial assistance, independence and empowerment for people living with ALS. In 2022, we will have funded nearly 80 grants – made possible …
Jim Thew joined the Navy in 1991 and was stationed as an aircraft mechanic at the Naval Air Facility Atsugi in Ayase, Kanagawa, Japan, where he met his wife, Kumiko. In 1999, they moved to Illinois to take care of …
Foundation News Join the ALS research conversation on Nov. 7! The Les Turner Symposium on ALS brings together leading ALS researchers, clinicians, and most importantly, people living with ALS and their families. Not only does the symposium provide the latest …
Foundation News Register for NINDS ALS Strategic Planning Workshop Tomorrow, the draft of the National Institute of Neurological Disorders and Stroke (NINDS) ALS Strategic Plan, is being made available to the public. The Les Turner ALS Foundation has been an …
New results from the Phase 3 clinical trial of tofersen, a drug in development by Biogen, have shown promise in treatment of superoxide dismutase 1 (SOD1) amyotrophic lateral sclerosis (ALS). According to the 12-month data, earlier initiation of treatment with …
As connecting fibers between motor neurons, axons help deliver vital messages between the brain and the spinal cord. For people living with ALS, deteriorating axons cause that connection to break, contributing to paralysis and death. Early research on NU-9, an …
This story has been updated with a link to the informational webinar about the new medication. The U.S. Food and Drug Administration has approved RADICAVA ORS®, an oral form of edaravone that reports the same efficacy as RADICAVA® for intravenous infusion. …
When Marshall Krolick passed away in February, the Les Turner ALS Foundation lost one of its longest-standing family members and biggest supporters. As a close friend of Les Turner, for whom the Foundation is named, Marshall was at the hospital …
