Foundation News Hope Through Caring Gala – Last Chance to Purchase Tickets! We’re less than three weeks away from the Hope Through Caring Gala! We’re excited to celebrate with the ALS community and honor three incredible individuals for their …
Faces of ALS: Anita Forté
Anita Forté – Fighting ALS with Positivity and Gratitude After having dealt with multiple ailments the past few years, along with ALS, there’s no doubt that Anita Forté is a fighter. She wakes up each morning and starts the day …
April 2022 Events eNews
Events News The Hope Through Caring Gala is Almost Here! That’s right, our annual Hope Through Caring Gala is just over a month away. If you’re just as excited as we are, purchase your tickets now! We have plenty …
April 2022 Foundation eNews
Foundation News Historic FDA Advisory Committee On Wednesday, March 30, an FDA Advisory Committee voted 6 to 4 that the current data on Amylyx Pharmaceuticals’ investigational treatment AMX0035 does not support it as an effective treatment for ALS. While …
Research News from the Les Turner ALS Center at Northwestern Medicine
The 40+ research scientists at the Les Turner ALS Center at Northwestern Medicine investigate a wide range of biologic mechanisms in ALS basic research. We are pleased to announce the recent publication of three new research papers from some of …
Our Oral Testimony to the FDA Advisory Committee on the Approval of AMX0035
Open Public Hearing FDA Advisory Committee on AMX0035 March 30, 2022 Good afternoon. My name is Andrea Pauls Backman, CEO of the Les Turner ALS Foundation. My only disclosure is that the Les Turner ALS Foundation receives less than 2% …
Nearly $1 Million in ALS Grants Awarded in 2022
The Les Turner ALS Foundation is excited to announce nearly $1 million to be funded in 2022 for new research grants and clinic and endowment support to the Les Turner ALS Center at Northwestern Medicine! These discoveries would not have …
Comments on Amylyx Pharmaceuticals’ New Drug Application for AMX0035
RE: Docket No. FDA-2018-N-0410 Dear FDA Advisory Committee: Founded in 1977, the Les Turner ALS Foundation is the oldest independent ALS group in the country. For 45 years, it has been our mission to provide the most comprehensive care and …
Faces of ALS: Joshua Cohen and Justin Klee – ALS Innovators and Advocates at Amylyx Pharmaceuticals, Inc.
At this year’s Hope Through Caring Gala on May 21, we are proud to present the Harvey and Bonny Gaffen Advancements in ALS Award to two innovators and longtime advocates of ALS – Joshua Cohen and Justin Klee, co-founders of …
LiveLikeLou’s Outdoor Clean-up and Scholarships
With spring in the air, there’s no better time than now to tackle those outdoor chores with a little help from your (volunteer) friends. Thanks to our partners at the LiveLikeLou Foundation, they are offering volunteer assistance and an opportunity …
