In response to a recent congressional hearing focused on the slow pace of drug approvals for neurological diseases, Les Turner ALS Foundation’s CEO Andrea Pauls Backman spoke with Suz Redfearn, a reporter for FDA News. Andrea was quoted extensively in …
Neuromuscular Disease Community Calls for Passage of ACT for ALS (H.R. 3537)
On July 13, 2021 the Les Turner ALS Foundation and 19 other advocacy organizations sent a letter to call on the House of Representatives to pass the ACT for ALS Act (H.R.3537) as soon as possible, and no later than …
July 2021 Foundation eNews
StrikeOut 5K and 1 Mile Run, Walk & Roll is back, register today! We are exicted to all be back together in-person for our Summer signature event on Thursday, July 22, at Guaranteed Rate Field, home of the Chicago White …
Faces of ALS: Cara Gallagher & Easton Stevenson, Support Service Coordinators
The Les Turner ALS Foundation’s Support Services Team often serve as the first point of contact for a person recently diagnosed with ALS and their families to help chart a path forward to address their immediate and future needs and …
June 2021 Events eNews
Strike Out ALS is Back at Guaranteed Rate Field We are thrilled to welcome our Les Turner ALS family back to Guaranteed Rate Field, home of the Chicago White Sox, on Thursday, July 22 for this year’s Strike Out ALS 5k …
June 2021 Foundation eNews
Celebrating Lou Gehrig Day with Jonathan Eig and Lin Brehmer Join longtime friends of our Les Turner ALS family, Jonathan Eig, acclaimed New York Times best-selling author of ‘Luckiest Man: The Life and Death of Lou Gehrig,’ and renowned Chicago …
Faces of ALS: Remembering Marshall Krolick – One of the Foundation’s Founding Members
When Marshall Krolick passed away in February, the Les Turner ALS Foundation lost one of its longest-standing family members and biggest supporters. As a close friend of Les Turner, for whom the Foundation is named, Marshall was at the hospital …
May 2021 Events eNews
Strike Out ALS 5k and 1 Mile Registration Open Summer is just around the corner and that means our Strike Out ALS 5k and 1 Mile Run, Walk & Roll is too! Just like last year, our virtual format offers …
May 2021 Foundation eNews
How Do You #TakeABreath? Breathing. It’s something that can easily be taken for granted. But for many people living with ALS, breathing can often be a daily challenge. Our #TakeABreath campaign during ALS Awareness Month in May allows you to share …
Tips for Preventing the Spread of Respiratory Disease
As someone living with ALS or in contact with someone living with ALS, you should always take special precautions to safeguard your health and the health of those around you. People living with ALS are at an increased risk of respiratory problems …