Below you'll find a list of all posts that have been categorized as “Foundation Blog”
RE: FDA-2022-N-0691 Dear FDA Advisory Committee: We write to express our strong support for the approval of tofersen under the FDA’s Accelerated Approval Program. Our organization’s long history of scientific research into SOD1-ALS and our depth of experience supporting people …
Scientists from the Les Turner ALS Center at Northwestern Medicine have discovered two ways to preserve diseased upper motor neurons that would normally be destroyed in ALS, based on a study in mice. Upper motor neurons initiate movement, and they …
Your support of the Les Turner ALS Foundation is felt by people living with ALS, caregivers, families and loved ones everywhere. By making a donation or volunteering your time, you helped ensure they had the support they needed – and …
Chicago radio host Lin Brehmer died today at the age of 68. He was widely known and beloved for his time on-air at WXRT-FM 93.1, but the ALS community in the Midwest knew another side of Lin: a friend, spokesperson …
Erin Weis generously offered her story for our 2021 Annual Appeal, helping raise vital funds for ALS care and research — just one of the many ways she volunteered to support the Les Turner ALS Foundation. But her story was …
Researchers at Northwestern University and the Les Turner ALS Center at Northwestern Medicine have created the first highly mature neurons from human induced pluripotent stem cells (iPSCs), a feat that opens new opportunities for medical research and potential transplantation therapies …
If your holiday shopping list includes someone who is living with ALS or a caregiver, we’ve compiled a list of gift ideas to help. Our support services team contributed these recommendations from their experience providing resources and support to people …
Every donation to the Les Turner ALS Foundation makes a direct, personal impact on the lives of people living with ALS and their families. Your gift reaches them in their homes, where their questions are answered by our support services …
As a licensed cosmetologist and hairdresser for 19 years, Janie Gobeli was concerned when she began to lose strength and dexterity in her right hand. Walking was already difficult for her, having recently broken her kneecap in a fall. Soon …
Victor was 14 years old when his father, an avid marathon runner, was diagnosed with ALS. To this day, he remembers how much the support his family received from the Les Turner ALS Foundation meant to them. “Anyone who is …
