(May 15, 2017)- For the first time, a variant in UBQLN4 gene has been associated with Lou Gehrig’s disease or amyotrophic lateral sclerosis (ALS) – a progressive disease resulting in the loss of nerve cells that control muscle movement, which …
MT Pharma America Announces FDA Approval of RADICAVA™ (Edaravone)
Just today, we learned the FDA has approved the first new drug for ALS in 22 years! The new drug is called Radicava and has been demonstrated to slow decline of physical function by 33 percent. The timing of this …
The National ALS Biorepository Launched – “Learn How to Participate”
One of the questions that people living with ALS often ask is – what can I do to help ALS Research? ALS patients can do that, with a personal contribution to the National ALS Registry (Registry) – in the newly …
PALS Webinar: How Professionals Can Help Kids in ALS Families
On April 5, our Director of Social Services, Laurie B. Fieldman, LCSW, led a Northeast ALS Consortium (NEALS) webinar, sharing her expertise on how to minimize the impact on children in ALS families. Many professionals don’t get the opportunity to …
2017 ALS News You Can Use
This past Sunday, March 19, the Foundation hosted our annual educational meeting that covered the latest on ALS research and patient care from experts in the field. Over 40 people including staff and board members, people living with ALS and …
Les Turner ALS Foundation Celebrates Nearly $700,000 Raised at Annual Gala
The Les Turner ALS Foundation, a 30+ year philanthropic partner of Northwestern University Feinberg School of Medicine, held its annual “Hope Through Caring” Gala on February 25 at the Loews Hotel Chicago. This year’s sold-out event of over 500 people …
Chicago Tribune: Hope Through Caring Gala 2017
The Les Turner ALS Foundation hosted its annual Hope Through Caring gala Feb. 25, honoring the organization’s board president, Ken Hoffman, and people living with ALS. Held at the Loews Hotel Chicago, 500 guests attended the sold-out event celebrating the …
Celebrating 30 Years of ALS Care
Northwestern’s Lois Insolia ALS Clinic is a model for multidisciplinary care. When it opened in July 1986, the Lois Insolia ALS Clinic at Northwestern Medicine was one of the first multidisciplinary ALS clinics in the country — the very first …
Investigating a Novel Pathology for ALS
For years, research into Amyotrophic Lateral Sclerosis (ALS) — the progressive neurodegenerative disease — has focused on the death of motor neurons in the spinal cord, which was believed to be the driving mechanism in ALS pathology. The death of …
ALS Reversal: Dr. Richard Bedlack’s Unique Approach
Dr. Richard Bedlack, Professor of Medicine/Neurology at Duke University, Director of the Duke ALS Clinic, and Chief of Neurology at the Durham Veterans Affairs Medical Center, dedicates his life’s work to researching alternative and innovative methods to cure ALS. Deeming …
