Descubra ideas de regalos pensadas y prácticas en nuestra Guía de regalos para personas que viven con ELA, desarrollada con la ayuda de nuestros coordinadores de servicios de apoyo. Ya sea que esté buscando un regalo para un ser querido …
El Centro de ELA Les Turner en Northwestern Medicine y el Centro Sean M. Healey & AMG para ELA Establecen la Iniciativa de Centros de Aceleración de Inscripción (ACE)
En colaboración con el Centro Sean M. Healey & AMG para ELA del Hospital General de Massachusetts, el Les Turner ALS Center en Northwestern Medicine se complace en anunciar el lanzamiento de la iniciativa Acceleration Centers of Enrollment (ACE). La …
Note from the CEO
Next week, the Les Turner ALS Foundation will welcome its new CEO, Laura Freveletti. I’m thrilled for Laura and the Foundation and will work closely with her, our board, staff and our many partners to help orient her over the …
Faces of ALS: Ina Turner Jones
“When I was told that Lester had ALS, I couldn’t even pronounce the word,” said Ina Turner Jones. “I don’t remember what I ate for lunch yesterday, but I remember the doctor’s speech verbatim.” Ina Turner Jones, widow of Les …
Faces of ALS: Giving New Meaning to ‘an ALS Journey’ …Road Trip!
Erin Weis generously offered her story for our 2021 Annual Appeal, helping raise vital funds for ALS care and research — just one of the many ways she volunteered to support the Les Turner ALS Foundation. But her story was …
January 2023 Foundation eNews
Foundation News Thank you We can’t thank you enough for your generosity during our end of year fundraising campaign. Your donations are making a profound impact not only on the lives of those living with ALS and their families, but …
Faces of ALS: Finding new joy following an ALS diagnosis
Tony Caruso was a busy OB-GYN who delivered hundreds of babies each year. So, it was no surprise when he began to notice symptoms of what he assumed was carpal tunnel syndrome. “I had these symptoms on and off for …
October 2022 Foundation eNews
Foundation News The 2022 ALS Walk for Life was a success because of you! The 21st annual ALS Walk for Life was a huge success. And we have the photos – and figures – to prove it. We loved seeing …
Donor Spotlight: Foglia Family Foundation
As a lifelong baseball fan, Vince Foglia knew about ALS after having heard Lou Gehrig’s famous speech announcing that he had the disease. “ALS had always grabbed my attention because it is a cruel disease for which there is no …
Faces of ALS: Channeling Mom’s Positivity in the Face of Familial ALS
As a healthcare worker, Tina cared for people diagnosed with ALS, including her mother. Prior to her mom’s passing in 2018, Tina started to experience symptoms that were eerily familiar. “Towards the end of my mother’s battle with ALS, I began …
