The Illinois Medicaid program recently announced significant payment changes to Complex Rehab Technology(CRT). The cost of supplying this specialized equipment will no longer be covered and as a result, CRT companies have been forced to suspend services for Medicaid beneficiaries …
Pesticide Exposure Found in Early Study to Possibly Trigger ALS
According to ALS News Today, a study published online in JAMA Neurology states that environmental pollutants such as pesticides has been linked to ALS and may represent modifiable ALS disease risk factors. Researchers at the University of Michigan studied occupational …
ALS Drug Development Guidance Available for Comment
Make Your Voice Heard We are happy to announce that the first draft of the community-driven FDA Guidance on ALS drug development is available for your review and comment. In our April e-newsletter, we shared the exciting news that the …
Registration Open: 2016 ALS Walk for Life
The 2016 ALS Walk for Life will be held on Sunday, September 18 at Soldier Field in Chicago and you can be one of the first to register. Join over 7,000 people at Chicago’s largest gathering for people living with …
International Alliance of ALS/MND Associations Update
The International Alliance of ALS/MND Associations has recently revised the guideline on the fundamental rights of people living with ALS/MND. These rights for people living with ALS/MND have been created to represent ideal conditions for those living with the disease …
Strike Out ALS 5k: Participant Spotlight
Meet Emily Gunty. Each month Emily and her father run at least one race together – most of which have a charitable component. For the past few years they have participated in the Strike Out ALS 5k despite having no …
Be an Advocate this May
May is national ALS Awareness Month and you can be an ALS Awareness Advocate! Each of us has been affected by ALS in different ways, but we are all advocates for finding treatments and a cure. Together, we can increase …
Thank You Volunteers!
Throughout the year, the Les Turner ALS Foundation has a consistent and overwhelming amount of support from volunteers helping fight ALS. The dedicated service from volunteers continues to have a huge impact on the work the Foundation is able to …
Phase 3 Clinical ALS Drug Trial
The Foundation is pleased to announce the start of a new clinical drug trial for ALS at the Lois Insolia ALS Clinic at the Les Turner ALS Research and Patient Center at Northwestern Medicine. VITALITY-ALS is a Phase 3 clinical …
Recap: Hope Through Caring Gala
At this year’s Hope Through Caring Gala, 450 guests honored Madeleine and Joe Glossberg and Joan and Paul Rubschlager for their commitment in the fight against ALS. The packed house also celebrated those courageously living with ALS and remembered those …
