On September 15, Amylyx Pharmaceuticals announced its intention to submit a New Drug Application to the FDA for AMX0035 for the treatment of ALS. If the New Drug Application is successful, AMX0035 would be only the third drug approved by …
September 2021 Events eNews
There’s Still Time to Join the ALS Community at the ALS Walk for Life The forecast for Saturday’s ALS Walk for Life is abundant sunshine with widespread warmth. And the weather is expected to be nice too! Let’s thank …
Faces of ALS: Steve McMichael
Super Bowl Champion Steve ‘Mongo’ McMichael was diagnosed with ALS in January 2021. He points out, “It’s called Lou Gehrig’s Disease. I didn’t know that it was a metaphor too. ALS is going to run the bases on you.” Adding …
September 2021 Foundation eNews
ALS Walk for Life – Honoring Teams We will be celebrating our 20th Anniversary of the ALS Walk for Life on September 18. As we honor all teams, here’s a look at two – a team that has been with …
August 2021 Foundation eNews
The ALS Walk for Life is September 18 The 20th anniversary of our ALS Walk for Life is returning to Chicago’s lakefront on Saturday, September 18! Our signature event features a beautiful two-mile stroll along the lakefront and finishes at …
Les Turner ALS Foundation’s Andrea Pauls Backman Advocates for «Bold, Urgent Methods» to Improve Access to Potential ALS Treatments
In response to a recent congressional hearing focused on the slow pace of drug approvals for neurological diseases, Les Turner ALS Foundation’s CEO Andrea Pauls Backman spoke with Suz Redfearn, a reporter for FDA News. Andrea was quoted extensively in …
Neuromuscular Disease Community Calls for Passage of ACT for ALS (H.R. 3537)
On July 13, 2021 the Les Turner ALS Foundation and 19 other advocacy organizations sent a letter to call on the House of Representatives to pass the ACT for ALS Act (H.R.3537) as soon as possible, and no later than …
July 2021 Foundation eNews
StrikeOut 5K and 1 Mile Run, Walk & Roll is back, register today! We are exicted to all be back together in-person for our Summer signature event on Thursday, July 22, at Guaranteed Rate Field, home of the Chicago White …
Faces of ALS: Cara Gallagher & Easton Stevenson, Support Service Coordinators
The Les Turner ALS Foundation’s Support Services Team often serve as the first point of contact for a person recently diagnosed with ALS and their families to help chart a path forward to address their immediate and future needs and …
June 2021 Events eNews
Strike Out ALS is Back at Guaranteed Rate Field We are thrilled to welcome our Les Turner ALS family back to Guaranteed Rate Field, home of the Chicago White Sox, on Thursday, July 22 for this year’s Strike Out ALS 5k …
