(May 15, 2017)- For the first time, a variant in UBQLN4 gene has been associated with Lou Gehrig’s disease or amyotrophic lateral sclerosis (ALS) – a progressive disease resulting in the loss of nerve cells that control muscle movement, which …
The National ALS Biorepository Launched – “Learn How to Participate”
One of the questions that people living with ALS often ask is – what can I do to help ALS Research? ALS patients can do that, with a personal contribution to the National ALS Registry (Registry) – in the newly …
Investigating a Novel Pathology for ALS
For years, research into Amyotrophic Lateral Sclerosis (ALS) — the progressive neurodegenerative disease — has focused on the death of motor neurons in the spinal cord, which was believed to be the driving mechanism in ALS pathology. The death of …
ALS Reversal: Dr. Richard Bedlack’s Unique Approach
Dr. Richard Bedlack, Professor of Medicine/Neurology at Duke University, Director of the Duke ALS Clinic, and Chief of Neurology at the Durham Veterans Affairs Medical Center, dedicates his life’s work to researching alternative and innovative methods to cure ALS. Deeming …
Les Turner ALS Symposium on ALS and NeuroRepair
The 6th Annual Les Turner Symposium on ALS and NeuroRepair, sponsored by the Les Turner ALS Research and Patient Center at Northwestern Medicine, was held on Monday, November 7 to a crowd of over 175 attendees. Organized by Dr. P. …
Healthy Diets May Be Associated With Better Function in ALS Patients
Diets rich in fruits and vegetables may be associated with better function, including respiratory, in ALS patients, according to a new study. The study, “Association Between Dietary Intake and Function in Amyotrophic Lateral Sclerosis”, was published in the journal JAMA …
Dr. Ozdinler Invited to Speak at the Nobel Forum in Stockholm, Sweden
Dr. Hande Ozdinler was recently invited to speak at the Nobel Forum Karolinska Instituetet in Stockholm Sweden which took place in early September. The title of her abstract which was chosen as a platform discussion was, “Unfolded proteins: from basic …
Cytokinetics Completes Enrollment in VITALITY-ALS
Thank you to all the ALS patients who have volunteered to participate in the Cytokinetics Phase III clinical trial of tirasemtiv in ALS at the Lois Insolia ALS Clinic at the Les Turner ALS Research and Patient Center at Northwestern …
Guidelines for Clinical Trials in ALS/MND – 2016 update
This past March, 140 international thought leaders in the field of ALS met at the ALS Clinical Trials Guidelines 2016 Workshop. Among those in attendance included Dr. Teepu Siddique and Dr. Senda Ajroud-Driss on behalf of the Les Turner Research …
