“I help fight ALS because I was blessed with the opportunity to do so. I have never worked with such a devastating disease and yet a patient population that is so amazingly selfless and courageous. I consider it an honor …
Faces of ALS: «Everyone deserves a voice…»
Tuesday, April 16 was World Voice Day, a day to talk about the importance of healthy and effective communication. It’s estimated that approximately 75% of all people diagnosed with ALS will need some form of communication assistance. Communication devices are …
Faces of ALS: «They’re like a second family…»
On Saturday, March 9, we honored Mindy Evans-Williams with the Hope Through Caring Award at our annual Hope Through Caring Gala. Mindy has been living with ALS for over two decades, supported by the Foundation every step of the way. …
Faces of ALS: What Comprehensive Care Means to Us
During a typical visit to the Les Turner ALS Center at Northwestern Medicine, people living with ALS meet with several members of their care team. From neurologists and genetic counselors to occupational therapists and dieticians, our clinicians at the Lois …
Faces of ALS: A Vision for our Future
Here’s the story of another year of extraordinary fundraising, passionate advocacy and, as always, hope for a cure. It’s the story of a group of individuals that are constantly looking to the future, ensuring we are here for every person …
Faces of ALS: Running For Those Who Can’t
From Utah to New Hampshire. Massachusetts to California. Ranging in age from 23 all the way up to 64. 23 individuals from across the United States joined our Les Turner ALS Foundation family on Sunday, October 7 to run the Bank …
Faces of ALS: Motivated by Music
An annual event for the Les Turner ALS Foundation is our ALS Walk for Life, held each fall for the past 17 years. As many Walkers know, the day holds a lot of meaning and tradition. A crowd favorite we’ve …
Faces of ALS: Legacies That Live On
In 2010, Mary Roemer’s life drastically changed. What were supposed to be golden years with her husband, Dave, were uprooted when he was diagnosed with ALS. Trying to come to terms with their “new normal,” Mary found one of our …
Faces of ALS: The Rhode to a Cure
When Jennifer Rhode, an avid outdoorswoman, first started noticing symptoms of muscle weakness, the 33 year old chalked it up to getting out of shape. After seeing multiple doctors, Jennifer was diagnosed with ALS at Mayo Clinic in July of …
Faces of ALS: Creating Memories
Kristin Rankin, PhD, of Palos Park, was a happily married mom to three energetic young daughters and on track to make tenure at the University of Illinois at Chicago’s School of Public Health. But everything changed when she was diagnosed, …
