$20,000 Triple Your Impact Challenge We’re kicking this Events eNews off with a new ALS Walk for Life Team Challenge! Starting today, the first 10 teams to register, raise $1,000 AND recruit 10 walkers will receive a $3 to $1 match ($2,000 …
August 2020 Foundation eNews
New and Improved Clinical Trials Webpage While it may feel like much in life is on pause at the moment, there is exciting news in the ALS clinical trials and studies space, including information on the upcoming HEALEY ALS Platform …
Virtual ALS Celebration of Life 2020
This past weekend, over 100 members of our Les Turner ALS family joined us for our Virtual Celebration of Life. The event consisted of a moving 15-minute ceremony honoring those we have lost to ALS. The ceremony included readings from …
July 2020 Foundation eNews
HEALEY ALS Platform Clinical Trial Update Our Les Turner ALS Center at Northwestern Medicine is a participating site for the first-ever ALS platform trial. The clinical drug trial, led by the Sean M. Healey & AMG Center at Massachusetts General …
Advocacy Announcement – June 26, 2020
The Les Turner ALS Foundation has joined with the ALS community in support of two pieces of legislation – the Promising Pathway Act (S. 3872) and the Accelerating Access to Critical Therapies for ALS Act (H. 7071), which is co-sponsored …
A Letter From Our CEO
Dear Friends, On Friday, due to the COVID-19 outbreak, the Governor of Illinois issued a statewide shelter-in-place order, similar to what we’ve seen in other parts of the country. This news creates challenges for all of us. How do we …
Telehealth – How We’re Adapting
The need to adapt to changing circumstances is not new to those with ALS. ALS requires constant attention and creativity to stay ahead of physical and emotional changes. As news continues to emerge about precautions against COVID-19, we are all …
March 2020 Events eNews
A Record-Breaking Hope Through Caring Gala We broke the record at our Hope Through Caring Gala by raising over $900,000 to support our Chicagoland ALS community and advance scientific research. We are so grateful to Ed Rapp, recipient of the …
March 2020 Foundation eNews
We Are the Les Turner ALS Foundation Last week at our record-breaking Hope Through Caring Gala we premiered our brand new Les Turner ALS Foundation video! Our vision for our latest video was simple – our Les Turner ALS family …
Faces of ALS: Honoring a Quarter Century with the Les Turner ALS Foundation
After nearly 25 years with the Les Turner ALS Foundation as Manager of Community Education, ALS Support Services Coordinator and Support Group Facilitator, and decades of nursing experience before joining us, Ileane Mindel, RN, is retiring. Ileane joined us as …
