About the Program:

My ALS Decision Tool™ was developed in collaboration with people living with ALS, caregivers, advocates, researchers and clinicians. This groundbreaking decision tool is a web-based, interactive series of questions and considerations which can help you take control of your ALS care. Currently, My ALS Decision Tool^TM includes two modules, breathing and nutrition, the two issues of most significant concern to people living with ALS.

By attending the webinar, you will learn how to use My ALS Decision Tool^TM to EXPLORE quality-of-life considerations, REVIEW treatment options, and PREPARE for conversations with your doctors. Lauren Webb, LCSW, Director of Support Services and Education, will also discuss the development of My ALS Decision Tool^TM as well as the benefit of shared decision-making tools to improve health outcomes. People struggling to make decisions about their own ALS care will find this information to be helpful and empowering.

Both the webinar and My ALS Decision Tool^TM are a free, public service of the Les Turner ALS Foundation.

About the Speaker:

Lauren Webb, LCSW, Director of Support Services and Education, joined the Les Turner ALS Foundation in 2019.  She has worked in the neuromuscular community for 20 years—providing direct patient care for individuals with ALS, working for a neurological specialty reference laboratory, coordinating clinical trials at Ann and Robert H. Lurie Children’s Hospital of Chicago and overseeing the Muscular Dystrophy Association’s nationwide Care Center Network. She has a master’s degree in social work with a concentration in health administration and policy from the University of Chicago. Lauren is a devoted advocate who approaches people and problems with humility, curiosity and humor.

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