Benefit: Understanding why you developed ALS

Some people living with ALS find comfort and relief in learning more about their condition. For example, some people may struggle with wondering why they developed ALS. If your type of ALS is linked to a pathogenic variant, genetic testing may provide an answer to that question.

On the other hand, it’s possible you could go through genetic testing and not get clear answers about whether your ALS is linked to a pathogenic variant. This is called an inconclusive result. In the next section, we’ll discuss the limitations and challenges of genetic testing in more detail.