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X-WR-CALNAME:Les Turner ALS Foundation
X-ORIGINAL-URL:https://es.lesturnerals.org
X-WR-CALDESC:Eventos para Les Turner ALS Foundation
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BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20231104T190000
DTEND;TZID=America/Chicago:20231104T230000
DTSTAMP:20260525T000246
CREATED:20230622T191831Z
LAST-MODIFIED:20231102T172933Z
UID:18103-1699124400-1699138800@es.lesturnerals.org
SUMMARY:All in For ALS Casino Night
DESCRIPTION:Our signature casino night event features exciting games like Blackjack\, Roulette and Craps all live in person at the East Bank Club. Guests can try their luck at the tables\, bid on auction items\, enjoy tasty appetizers\, and snap pictures in the photo booth\, all while joining other young professionals to show their support for the Les Turner ALS Foundation\, the leader in comprehensive ALS care in Chicagoland. \nMany Young Professional Group (YPG) members and event attendees have had this devastating disease touch their lives and take their loved one; and yet they still come together to help ensure that one day there is a cure for ALS. This is our chance to give back to them by helping fund vital ALS care and research. \nYour generosity helps ensure that people living with ALS live their lives with both quality and dignity. 100% of the event’s proceeds will benefit the Foundation. \n  \n 
URL:https://es.lesturnerals.org/event/all-in-for-als-casino-night-2/
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BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20231106T080000
DTEND;TZID=America/Chicago:20231106T170000
DTSTAMP:20260525T000246
CREATED:20230621T160053Z
LAST-MODIFIED:20230621T160053Z
UID:18047-1699257600-1699290000@es.lesturnerals.org
SUMMARY:13th Annual Les Turner Symposium on ALS
DESCRIPTION:The 2023 Les Turner Symposium on ALS will be held virtually and in-person at Northwestern Memorial Hospital in Chicago on Monday\, Nov. 6. \nThe Les Turner Symposium on ALS has featured presentations from leading ALS scientists and clinicians\, as well as people living with ALS; plus research posters\, a Q&A panel and more. The symposium is free and open to the public\, with thanks to our generous sponsors. \nTime: Registration Opens- 8:00am \nSymposium – 8:45am – 5:00pm \nBreakfast\, lunch and refreshments will be served. \nIt will be held in person with opportunities to stream presentations from home. \nRegistration and Abstract submissions will be open in July. \nKeynote Presentation: Antisense based therapy for rare neurological diseases\nC. Frank Bennett\, Ph.D \nCurrently there are multiple genetic based medicines being pursued for rare neurological diseases including antisense technology\, gene therapy and gene editing technologies. Antisense oligonucleotides (ASOs are one of the more advanced technologies. ASOs are synthetic\, chemical modified nucleic acid analogs designed to bind to RNA by Watson-Crick base paring. Upon binding to the RNA\, ASOs modulate the function of the targeted RNA through a variety of mechanisms. Both protein coding\, as well as non-coding RNAs\, can be targets of ASO based drugs\, significantly broadening therapeutic targets for drug discovery compared to small molecules and protein based therapeutics. The approval of nusinersen (Spinraza™) as a treatment for spinal muscular atrophy (SMA) and the recent approval of tofersen (Qalsody) for familial ALS validates the utility of antisense drugs for the treatment of motor neuron diseases. The application of antisense technology as potential therapy for other rare neurodegenerative diseases and neurodevelopmental disorders will be discussed.
URL:https://es.lesturnerals.org/event/13th-annual-les-turner-symposium-on-als/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20230114T103000
DTEND;TZID=UTC:20230114T120000
DTSTAMP:20260525T000246
CREATED:20171215T212728Z
LAST-MODIFIED:20240110T191029Z
UID:4481-1673692200-1673697600@es.lesturnerals.org
SUMMARY:Navigating ALS Together Support Group
DESCRIPTION:Meets the Second Saturday of each month from 10:30am – 12:00 pm \nFacilitator(s): Karen Raley Steffens\, RN\, CHPN\, CCM \nRSVP: Please email us at supportgroup@es.lesturnerals.org to RSVP \n*Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*
URL:https://es.lesturnerals.org/event/navigating-als-together/
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BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20210819T150000
DTEND;TZID=America/Chicago:20210819T160000
DTSTAMP:20260525T000246
CREATED:20210817T021756Z
LAST-MODIFIED:20230504T200037Z
UID:11181-1629385200-1629388800@es.lesturnerals.org
SUMMARY:Caregivers-Only Support Group
DESCRIPTION:The Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental\, accepting atmosphere without their loved one\, who is living with ALS\, being present. Caregivers share a common experience; life has become so tumultuous that they often feel exhausted and overwhelmed\, hungry for emotional comfort. Together\, with the guidance and encouragement of a devoted facilitator\, caregivers can find the strength to persevere. And\, by feeling heard and understood\, caregivers become more equipped to face another day with new coping strategies. \nTime: Meets the Third Thursday of each month from 3pm to 4pm \nFacilitator: Anne Lidsky\, PhD \nRSVP: Please RSVP here. \n*Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*
URL:https://es.lesturnerals.org/event/caregivers-only-support-group-thursday/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20231021T100000
DTEND;TZID=America/Chicago:20231021T110000
DTSTAMP:20260525T000246
CREATED:20230822T185003Z
LAST-MODIFIED:20231003T171852Z
UID:18560-1697882400-1697886000@es.lesturnerals.org
SUMMARY:Caregiver Only Support Group
DESCRIPTION:The Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental\, accepting atmosphere without their loved one\, who is living with ALS\, being present. Caregivers share a common experience; life has become so tumultuous that they often feel exhausted and overwhelmed\, hungry for emotional comfort. Together\, with the guidance and encouragement of a devoted facilitator\, caregivers can find the strength to persevere. And\, by feeling heard and understood\, caregivers become more equipped to face another day with new coping strategies. \nTime: Meets the Third Saturday of each month from 10 am to 11 am \nFacilitator: Anne Lidsky\, PhD \nRSVP: Please RSVP here. \n*Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*
URL:https://es.lesturnerals.org/event/caregiver-only-support-group-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20231118T110000
DTEND;TZID=America/Chicago:20231118T113000
DTSTAMP:20260525T000246
CREATED:20230822T145323Z
LAST-MODIFIED:20231127T172740Z
UID:18542-1700305200-1700307000@es.lesturnerals.org
SUMMARY:Celebration of Life
DESCRIPTION:This year’s Celebration of Life Live Event has concluded. Thank you to everyone who submitted photos and participated. \n 
URL:https://es.lesturnerals.org/event/celebration-of-life-2023/
LOCATION:Virtual
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20231120T140000
DTEND;TZID=UTC:20231120T150000
DTSTAMP:20260525T000246
CREATED:20231024T194007Z
LAST-MODIFIED:20240110T191530Z
UID:19125-1700488800-1700492400@es.lesturnerals.org
SUMMARY:Navigating ALS Together Support Group
DESCRIPTION:Meets the Third Monday of each month from 2-3:15 p.m. \nFacilitator: Anne Lidsky\, PhD \nRSVP: Please email us at supportgroup@es.lesturnerals.org to RSVP \n*Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*
URL:https://es.lesturnerals.org/event/navigatingalstogether/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20230123T180000
DTEND;TZID=America/Chicago:20230123T193000
DTSTAMP:20260525T000246
CREATED:20220302T215618Z
LAST-MODIFIED:20230504T200204Z
UID:12588-1674496800-1674502200@es.lesturnerals.org
SUMMARY:Living After Loss (Bereavement Group)
DESCRIPTION:An open\, supportive monthly bereavement group for anyone (family\, friend\, etc.) who has lost a loved one to ALS within the past year. This group will provide a place to connect with others who have experienced the loss of a loved one to ALS; stories will be told\, feelings will be explored\, and information will be shared about how to remain connected to the memory of a loved one. \nDate: Fourth Monday \nTime: 6pm – 7:30pm \nFacilitator(s): Easton Stevenson\, LCSW\n \nRSVP: Please RSVP here. \n*Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.* \n 
URL:https://es.lesturnerals.org/event/living-after-loss-bereavement-group/
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