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X-WR-CALDESC:Eventos para Les Turner ALS Foundation
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DTSTART;TZID=UTC:20210826T120000
DTEND;TZID=UTC:20210826T130000
DTSTAMP:20210816T202555Z
CREATED:20210813T221846Z
LAST-MODIFIED:20210816T202555Z
UID:11152-1629979200-1629982800@es.lesturnerals.org
SUMMARY:ALS Learning Series: Managing Speech & Swallowing Problems in ALS
DESCRIPTION:ALS Learning Series: Managing Speech & Swallowing Problems in ALS\nFeaturing Kristin Larsen\, MA\, CCC-SLP\, Speech and Language Pathologist at Northwestern Medicine\nThursday\, August 26 at 12 p.m. CDT\nFor many living with ALS\, speech and swallowing changes may be the first symptoms experienced and can impact many aspects of living with ALS. Join Kristin Larsen\, MA\, CCC-SLP\, Speech and Language Pathologist at Northwestern Medicine\, who will present at our August ALS Learning Series program. \nThis webinar will discuss various ways ALS can impact your speech and swallowing. We will focus on early identification of symptoms\, provide helpful tips including tongue and respiratory exercises along with voice banking and communication aid options. Knowing what to expect as your symptoms change can help you make well-informed and timely decisions to communicate and swallow safely for as long as possible. \nStay tuned for more details on how to register!
URL:https://es.lesturnerals.org/event/als-learning-series-managing-speech-swallowing-problems-in-als/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20180127T103000
DTEND;TZID=UTC:20180127T120000
DTSTAMP:20171215T222149Z
CREATED:20161110T014631Z
LAST-MODIFIED:20171215T222149Z
UID:2919-1517049000-1517054400@es.lesturnerals.org
SUMMARY:Wheaton Support Group
DESCRIPTION:*Meets the fourth Saturday of each month from 10:30am-12pm \nSupport group meetings are open to patients\, family members\, caregivers and friends. Each facility is wheelchair accessible and offers free parking. We request that you RSVP if you are planning to attend any of these meetings to assure there is availability. Alternatively\, if no one responds\, meetings will not be held. \nPlease contact Judy Richman at jrichman@es.lesturnerals.org or 847 679 3311 to RSVP\, for more information on any support groups or meetings\, or to be placed on our support group mailing list. \nFacilitator(s): Ileane Mindel\, RN and Elsa Cherwak\, PT
URL:https://es.lesturnerals.org/event/wheaton-support-group-4-2017-11-25/
LOCATION:Marianjoy Rehab Center\, 26 W 171 Roosevelt Road\, Wheaton\, IL\, 60187\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20210829T130000
DTEND;TZID=UTC:20210829T160000
DTSTAMP:20210817T015335Z
CREATED:20210730T214814Z
LAST-MODIFIED:20210817T015335Z
UID:11112-1630242000-1630252800@es.lesturnerals.org
SUMMARY:All In for ALS Bar Event
DESCRIPTION:Hosted by the Young ProfessionALS Group\nJoin our Young ProfessionALS Group for their summer bar event on Sunday\, August 29 at Rizzo’s Bar (3658 N. Clark) in Wrigleyville for all you can drink and 20% off food! Spend the afternoon supporting Chicagoland’s leader in comprehensive ALS care. \nBuy Tickets \nRemember to get your ticket ahead of time to save money. Pre-registration closes at 12pm on Friday\, August 27. All proceeds from ticket sales will directly support people living with ALS in the Chicagoland area. MUST BE 21 OR OLDER WITH PROOF OF ID AT THE DOOR \nEntry Fee: \nPre-event Ticket – $55 \nAt the Door Ticket – $60 \nBuy Tickets \n*The Les Turner ALS Foundation will follow all local and state safety guidelines regarding COVID-19. Our team will stay appraised of any state or local government changes and share those with our constituents.
URL:https://es.lesturnerals.org/event/all-in-for-als-bar-event/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20210918
DTEND;VALUE=DATE:20210919
DTSTAMP:20210601T191431Z
CREATED:20210601T191431Z
LAST-MODIFIED:20210601T191431Z
UID:10858-1631923200-1632009599@es.lesturnerals.org
SUMMARY:20th Anniversary ALS Walk for Life
DESCRIPTION:Saturday\, September 18\, 2021\nSoldier Field in Chicago\, IL \n  \n 
URL:https://es.lesturnerals.org/event/20th-anniversary-als-walk-for-life/
LOCATION:Soldier Field\, 1410 Museum Campus Dr\, Chicago \, IL\, 60605\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20210923T150000
DTEND;TZID=America/Chicago:20210923T160000
DTSTAMP:20210909T174933Z
CREATED:20210909T174933Z
LAST-MODIFIED:20210909T174933Z
UID:11386-1632409200-1632412800@es.lesturnerals.org
SUMMARY:Caregivers-Only Support Group
DESCRIPTION:The Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental\, accepting atmosphere without their loved one\, who is living with ALS\, being present. Caregivers share a common experience; life has become so tumultuous that they often feel exhausted and overwhelmed\, hungry for emotional comfort. Together\, with the guidance and encouragement of a devoted facilitator\, caregivers can find the strength to persevere. And\, by feeling heard and understood\, caregivers become more equipped to face another day with new coping strategies. \nTime: Meets the Third Thursday of each month from 3pm to 4pm \nFacilitator: Anne Lidsky\, PhD \nRSVP: Please RSVP here.
URL:https://es.lesturnerals.org/event/caregivers-only-support-group-2021-09-23/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20210925T150000
DTEND;TZID=America/Chicago:20210925T160000
DTSTAMP:20210909T174032Z
CREATED:20210909T174032Z
LAST-MODIFIED:20210909T174032Z
UID:11340-1632582000-1632585600@es.lesturnerals.org
SUMMARY:Caregivers-Only Support Group
DESCRIPTION:The Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental\, accepting atmosphere without their loved one\, who is living with ALS\, being present. Caregivers share a common experience; life has become so tumultuous that they often feel exhausted and overwhelmed\, hungry for emotional comfort. Together\, with the guidance and encouragement of a devoted facilitator\, caregivers can find the strength to persevere. And\, by feeling heard and understood\, caregivers become more equipped to face another day with new coping strategies. \nTime: Meets the Third Saturday of each month from 10am to 11am \nFacilitator: Anne Lidsky\, PhD \nRSVP: Please RSVP here.
URL:https://es.lesturnerals.org/event/caregivers-only-support-group-2021-09-25/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20210930T120000
DTEND;TZID=America/Chicago:20210930T131500
DTSTAMP:20210922T143502Z
CREATED:20210921T192622Z
LAST-MODIFIED:20210922T143502Z
UID:11423-1633003200-1633007700@es.lesturnerals.org
SUMMARY:ALS Learning Series: Designing a Toolbox for Continuous Communication with Your Existing Technology
DESCRIPTION:ALS Learning Series: Designing a Toolbox for Continuous Communication with Your Existing Technology\nFeaturing Janet Bischof-Rosario\, Allied Health Supervisor and Occupational Therapist in the Technology Center at the Shirley Ryan AbilityLab and AnneMarie Doyle\, Senior Speech-Language Pathologist at Shirley Ryan AbilityLab\nThursday\, September 30 at 12 p.m. CT\n  \nAs ALS can affect speech and the ability to handle standard communication devices\, this webinar will identify solutions for continuing to use smart phones\, tablets\, and computers. \nThis course will focus on making communication as easy as possible throughout this difficult journey\, using technology and collaboration with each person’s team including their family\, caregivers\, therapists\, physicians\, and vendors. \nRegister and learn more here \n 
URL:https://es.lesturnerals.org/event/designing-a-toolbox-for-continuous-communication-with-your-existing-technology/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20211007T120000
DTEND;TZID=America/Chicago:20211007T130000
DTSTAMP:20210922T141605Z
CREATED:20210922T134635Z
LAST-MODIFIED:20210922T141605Z
UID:11433-1633608000-1633611600@es.lesturnerals.org
SUMMARY:ALS Learning Series: Family Planning and ALS
DESCRIPTION:ALS Learning Series: Family Planning and ALS\nFeaturing  Lisa Kinsley\, Senior Genetic Counselor\, Neurology Department at Northwestern Medicine\nThursday\, October 7 at 12 p.m. CT\n \n  \nGenetic testing for a familial ALS gene may have implications for those who are considering whether or not to start a family. \nThis webinar will review the family planning options available to individuals who are interested in reducing the risk of passing on a genetic disorder. \nWe’ll review what is involved in each option as well as some of the biological\, ethical and financial considerations that play a role in this important decision. \nRegister and learn more here
URL:https://es.lesturnerals.org/event/als-learning-series-family-planning-and-als/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20211010
DTEND;VALUE=DATE:20211011
DTSTAMP:20210113T234015Z
CREATED:20210113T234015Z
LAST-MODIFIED:20210113T234015Z
UID:9765-1633824000-1633910399@es.lesturnerals.org
SUMMARY:Bank of America Chicago Marathon
DESCRIPTION:Cross one off your bucket list and sign up with Team Race for ALS in the 2021 Bank of America Chicago Marathon! \nTackle this 26.2-mile course through iconic Grant Park and beautiful Chicago neighborhoods. Surpass your endurance goals while supporting people and families living with ALS. We’ll help you every step of the way! \n \nContact us at events@es.lesturnerals.org with questions.
URL:https://es.lesturnerals.org/event/bank-of-america-chicago-marathon/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20211016T080000
DTEND;TZID=UTC:20211016T140000
DTSTAMP:20210922T172316Z
CREATED:20210428T232452Z
LAST-MODIFIED:20210922T172316Z
UID:10242-1634371200-1634392800@es.lesturnerals.org
SUMMARY:20th Annual Lew Blond 5k
DESCRIPTION:  \n \n20th Anniversary Lew Blond Run\n October 16\, 2021 at Wescott School\nThe Lew Blond Memorial 5K Run/Walk is held to honor Lew Blond\, a Maple School teacher who passed away from ALS in February 2000. \nSince then\, the Lew Blond Memorial 5K Run/Walk has been a generous Fundraise Your Way event and supporter of those affected by ALS. The event attracts thousands of participants and volunteers and proves to be one of Northbrook’s signature community events!
URL:https://es.lesturnerals.org/event/20th-annual-lew-blond-5k/
LOCATION:Wescott School\, 1820 Western Ave\, Northbrook\, IL\, 60062\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20210819T150000
DTEND;TZID=America/Chicago:20210819T160000
DTSTAMP:20230504T200037Z
CREATED:20210817T021756Z
LAST-MODIFIED:20230504T200037Z
UID:11181-1629385200-1629388800@es.lesturnerals.org
SUMMARY:Caregivers-Only Support Group
DESCRIPTION:The Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental\, accepting atmosphere without their loved one\, who is living with ALS\, being present. Caregivers share a common experience; life has become so tumultuous that they often feel exhausted and overwhelmed\, hungry for emotional comfort. Together\, with the guidance and encouragement of a devoted facilitator\, caregivers can find the strength to persevere. And\, by feeling heard and understood\, caregivers become more equipped to face another day with new coping strategies. \nTime: Meets the Third Thursday of each month from 3pm to 4pm \nFacilitator: Anne Lidsky\, PhD \nRSVP: Please RSVP here. \n*Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*
URL:https://es.lesturnerals.org/event/caregivers-only-support-group-thursday/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20211101T090000
DTEND;TZID=UTC:20211101T160000
DTSTAMP:20211012T155347Z
CREATED:20210624T010717Z
LAST-MODIFIED:20211012T155347Z
UID:10939-1635757200-1635782400@es.lesturnerals.org
SUMMARY:11th Annual Les Turner Symposium on ALS
DESCRIPTION:Les Turner ALS Center at Northwestern Medicine\n11th Annual Les Turner Symposium on ALS\n\nMonday\, November 1\, 2021\n9am – 4pm\nHeld Virtually\nWe’re excited to host the 11th Annual Les Turner Symposium on ALS\, which this year will be in a virtual format\, on Monday\, November 1. Like in previous years\, we are again welcoming the brightest minds in the ALS field to share the latest information and advancements in research and clinical care. \nThe virtual Symposium offers you the unique opportunity to hear from some of the foremost professionals in the ALS community\, locally\, nationally and internationally. \nREGISTER HERE \nTo learn more about the Symposium\, visit: lesturnerals.org/symposium \n 
URL:https://es.lesturnerals.org/event/11th-annual-les-turner-als-symposium/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20211108T080000
DTEND;TZID=UTC:20211108T170000
DTSTAMP:20210202T015006Z
CREATED:20210202T015006Z
LAST-MODIFIED:20210202T015006Z
UID:9824-1636358400-1636390800@es.lesturnerals.org
SUMMARY:
DESCRIPTION:Les Turner ALS Center at Northwestern Medicine\n11th Annual Les Turner ALS Symposium\n\nMonday\, November 8\, 2021\nSave the Date
URL:https://es.lesturnerals.org/event/9824/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20211111T120000
DTEND;TZID=America/Chicago:20211111T130000
DTSTAMP:20211012T133447Z
CREATED:20211012T133447Z
LAST-MODIFIED:20211012T133447Z
UID:11550-1636632000-1636635600@es.lesturnerals.org
SUMMARY:ALS Learning Series: Hospice & Palliative Care for People with ALS
DESCRIPTION:About the Program: \nAlthough we know that ALS is currently an incurable progressive neurodegenerative disease\, it remains difficult for patients\, families\, and healthcare professionals to have discussions about the progression of this serious illness and to plan for the end of life. This is most often due to the overarching apprehension that clinicians\, families and patients have regarding how to talk about it\, what to say and most importantly\, when to say it. This webinar will cover how to talk about end of life\, what to say\, and when to say it. We’ll discuss the differences between Palliative Care and Hospice Care\, as well as their benefits\, services offered\, when to seek out this care\, and what you need to know before signing-up for hospice services. \nAbout the Speaker: \nMartha L. Twaddle\, MD\, FACP\, FAAHPM\, HMDC\, is the Waud Family Medical Director for Palliative Medicine & Supportive Care at Northwestern Medicine. She has 30-plus years of clinical expertise and practice working with and supporting individuals and families with serious illness at the end of life. \nRegister Here!
URL:https://es.lesturnerals.org/event/als-learning-series-hospice-palliative-care-for-people-with-als/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20211120T103000
DTEND;TZID=UTC:20211120T103000
DTSTAMP:20211025T150538Z
CREATED:20180928T214752Z
LAST-MODIFIED:20211025T150538Z
UID:10421-1637404200-1637404200@es.lesturnerals.org
SUMMARY:Wheaton Support Group *New Date: November 20\, 2021*
DESCRIPTION:Meets the Fourth Saturday of each month from 10:30am-12:30pm \nFacilitator(s): Ileane Mindel\, RN\, Julie Stowell\, RN\, CHPN and Elsa Cherwak\, PT \nRSVP: Please email us at supportgroup@es.lesturnerals.org to RSVP
URL:https://es.lesturnerals.org/event/wheaton-support-group-5-2021-11-27/
LOCATION:Marianjoy Rehab Center\, 26 W 171 Roosevelt Road\, Wheaton\, IL\, 60187\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20211126
DTEND;VALUE=DATE:20211129
DTSTAMP:20211118T230041Z
CREATED:20211115T163317Z
LAST-MODIFIED:20211118T230041Z
UID:11934-1637884800-1638143999@es.lesturnerals.org
SUMMARY:World's Longest Turkey Trot
DESCRIPTION:Years ago\, ultra marathoner Alfredo Perro said to his friend Scott Kummer that he wanted to run one last 100-mile race before the end of the year. Scott and Alfredo decided to simply run from the Chicago «Bean» to the city of Milwaukee for a roughly 100-mile turkey trot on Black Friday. They called it the “World’s Longest Turkey Trot.” \nSoon after\, Alfredo was diagnosed with ALS and lost his battle with the disease in November of 2015. Every year\, runners have carried on Alfredo’s tradition in his honor. \nThis year\, the Turkey Trot will be both virtual and in-person. You can sign-up or donate here! \nFrom November 26-28\, participants will run as many miles as possible while raising awareness and money for ALS.
URL:https://es.lesturnerals.org/event/worlds-longest-turkey-trot/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20211216T120000
DTEND;TZID=America/Chicago:20211216T130000
DTSTAMP:20211118T161328Z
CREATED:20211118T161328Z
LAST-MODIFIED:20211118T161328Z
UID:12085-1639656000-1639659600@es.lesturnerals.org
SUMMARY:ALS Learning Series: Introducing My ALS Decision ToolTM - Empowering You to Take Control of Your ALS Care
DESCRIPTION:About the Program: \nMy ALS Decision Tool™ was developed in collaboration with people living with ALS\, caregivers\, advocates\, researchers and clinicians. This groundbreaking decision tool is a web-based\, interactive series of questions and considerations which can help you take control of your ALS care. Currently\, My ALS Decision ToolTM includes two modules\, breathing and nutrition\, the two issues of most significant concern to people living with ALS. \nBy attending the webinar\, you will learn how to use My ALS Decision ToolTM to EXPLORE quality-of-life considerations\, REVIEW treatment options\, and PREPARE for conversations with your doctors. Lauren Webb\, LCSW\, Director of Support Services and Education\, will also discuss the development of My ALS Decision ToolTM as well as the benefit of shared decision-making tools to improve health outcomes. People struggling to make decisions about their own ALS care will find this information to be helpful and empowering. \nBoth the webinar and My ALS Decision ToolTM are a free\, public service of the Les Turner ALS Foundation. \nAbout the Speaker: \n \nLauren Webb\, LCSW\, Director of Support Services and Education\, joined the Les Turner ALS Foundation in 2019.  She has worked in the neuromuscular community for 20 years—providing direct patient care for individuals with ALS\, working for a neurological specialty reference laboratory\, coordinating clinical trials at Ann and Robert H. Lurie Children’s Hospital of Chicago and overseeing the Muscular Dystrophy Association’s nationwide Care Center Network. She has a master’s degree in social work with a concentration in health administration and policy from the University of Chicago. Lauren is a devoted advocate who approaches people and problems with humility\, curiosity and humor. \nRegister here
URL:https://es.lesturnerals.org/event/als-learning-series-introducing-my-als-decision-tooltm-empowering-you-to-take-control-of-your-als-care/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20211218T103000
DTEND;TZID=UTC:20211218T123000
DTSTAMP:20210525T234435Z
CREATED:20180928T214752Z
LAST-MODIFIED:20210525T234435Z
UID:10422-1639823400-1639830600@es.lesturnerals.org
SUMMARY:Wheaton Support Group
DESCRIPTION:From 10:30am-12:30pm \nFacilitator(s): Ileane Mindel\, RN\, Julie Stowell\, RN\, CHPN and Elsa Cherwak\, PT \nRSVP: Please email us at supportgroup@es.lesturnerals.org to RSVP
URL:https://es.lesturnerals.org/event/wheaton-support-group-5-2021-12-25/
LOCATION:Marianjoy Rehab Center\, 26 W 171 Roosevelt Road\, Wheaton\, IL\, 60187\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20220120T120000
DTEND;TZID=America/Chicago:20220120T130000
DTSTAMP:20220106T194451Z
CREATED:20220106T192400Z
LAST-MODIFIED:20220106T194451Z
UID:12246-1642680000-1642683600@es.lesturnerals.org
SUMMARY:ALS Learning Series: Mobility Aids and Home Modification Tips to Improve Quality of Life in ALS
DESCRIPTION:About the Program: \nDuring this webinar\, the presenters will be discussing symptoms of mobility weakness and how ALS affects mobility. You will learn about a variety of mobility aids to assist you in your daily life and learn what information is important to know when modifying your home for use of a power wheelchair. You will also learn about custom wheelchair set up\, ramp accessibility\, vehicle accessibility and minor home modifications that will allow for safe mobility in the home and community so that you can maintain as much independence as possible using a power wheelchair. \nLastly\, you will be provided with information about the Les Turner ALS Foundation’s new\, ALS and Mobility guide that will walk you through a variety of topics including: \n\nAids for Walking\nLeg Braces\nWheelchairs\nTransportation options\nAids for transfers\nTypes of patient lifts\nSeat lift recliner chairs\n\n  \nAbout the Speakers: \n\n\n\nEsmerelda Vazquez\, OTD\, OTR/L\, ATP (right) & Jeannette Wider\, MS\, OTR/L (left) \nEsmeralda Vazquez\, OTD\, OTR/L\, ATP and Jeannette Wider\, MS\, OTR/L\, of Shirley Ryan AbilityLab in Chicago\, will discuss the variety of mobility aids to assist with daily living\, what information is important to know when modifying your home\, and how to modify your home for safe mobility with a power wheelchair. \n  \n  \n  \n  \n  \n  \nRegister here
URL:https://es.lesturnerals.org/event/als-learning-series-mobility-aids-and-home-modification-tips-to-improve-quality-of-life-in-als/
LOCATION:Virtual
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20220224T120000
DTEND;TZID=America/Chicago:20220224T130000
DTSTAMP:20220204T173836Z
CREATED:20220125T222634Z
LAST-MODIFIED:20220204T173836Z
UID:12353-1645704000-1645707600@es.lesturnerals.org
SUMMARY:ALS Learning Series: Everything You Ever Wanted to Know About ALS and the Veterans Administration
DESCRIPTION:About the Program: \nVeterans are twice as likely to develop ALS in comparison to those who have not served in the military. Dr. Kvarnberg\, Clinic Director of the ALS Interdisciplinary Clinic at Edward Hines\, Jr. VA Hospital will provide an overview of the link between military service and the approach that the VA takes in caring for veterans. Dr. Kvarnberg will discuss VA benefits available to those impacted by ALS\, and share information about his clinic. This webinar will provide useful information to veterans with ALS and their caregivers wanting to know more about: \n\nClinical care and everything ordered by a VA doctor or clinician\nMedications\, supplies from pharmacy\nHome Health Care\nPhysical Therapy\nOccupational Therapy\nSpeech Therapy\nHospice & Palliative Care\nSocial Work\nMental Health\nDurable Medical Equipment\n\nAbout the Speakers: \nDr. Kvarnberg (left) and Robert Ives (right) \nDr. Kvarnberg received his medical degree from Rush University in 2003. As a medical student\, he was the recipient of a Navy Health Professional Scholarship which led him to serve four years of active duty as a Navy physician and included two deployments to Iraq with the Marines. He then received his neurology residency and neuromuscular fellowship training at the University of Illinois at Chicago. He has worked at the Hines VA Hospital since 2012 seeing veterans with general neurology complaints and complicated neuromuscular problems. He has been the Clinic Director of the Hines VA ALS Interdisciplinary clinic since he started it in 2013. The clinic sees approximately 12 patients per month in a weekly half-day of clinic. Since June 2021\, he has accepted the role as the Acting Chief of the Neurology Service at Hines. In his free time\, he is an avid hiker and regularly trains in aikido. \nRobert Ives\, a veteran living with ALS\, was diagnosed in 2014. As an engineer and business owner\, Bob never backed down from a challenge. His tenacity was formed as a young lieutenant in the Army during the building of the Berlin Wall and the Cuban Missile Crisis. Both of these traits have served him well since his diagnosis. Bob and his wife\, Mary\, are active in our Chicago Support Group\, and are dedicated donors to the Foundation’s Research and Support Services programs. \nThe webinar is a free\, public service of the Les Turner ALS Foundation. \nRegister here
URL:https://es.lesturnerals.org/event/als-learning-series-everything-you-ever-wanted-to-know-about-als-and-the-veterans-administration/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20220317T120000
DTEND;TZID=America/Chicago:20220317T130000
DTSTAMP:20220304T151250Z
CREATED:20220304T151250Z
LAST-MODIFIED:20220304T151250Z
UID:12822-1647518400-1647522000@es.lesturnerals.org
SUMMARY:March ALS Learning Series: Making Activities of Daily Life Easier in ALS
DESCRIPTION:About the Program: \nThis webinar will focus on how ALS may impact your daily routines and how an occupational therapist can offer tips to make daily living a little easier. You will learn about devices for getting through your daily routine and suggestions on ways to increase your independence. You will learn about different types of adaptive equipment for eating\, drinking\, toileting\, bathing\, oral hygiene\, grooming and recreation. \nThe webinar is a free\, public service of the Les Turner ALS Foundation. \nAbout the Speaker: \nBecca Schroeder\, MOT\, OTR/L\, has been an occupational therapist at Northwestern Memorial Hospital since 2018. She is part of the multidisciplinary team at the Lois Insolia ALS Clinic at the Les Turner ALS Center at Northwestern Medicine. \nRegister here
URL:https://es.lesturnerals.org/event/march-als-learning-series-making-activities-of-daily-life-easier-in-als/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20220331T180000
DTEND;TZID=America/Chicago:20220331T193000
DTSTAMP:20220302T222558Z
CREATED:20220225T180154Z
LAST-MODIFIED:20220302T222558Z
UID:12521-1648749600-1648755000@es.lesturnerals.org
SUMMARY:Moving Forward After Loss (Bereavement Group) - Spring Session
DESCRIPTION:A closed\, 6 week therapeutic bereavement group for spouses or partners of people who have died from ALS within the past six to nine months. This group provides support\, validation\, and education in a supportive setting to those who are grieving the loss of their loved one. \nDate: Thursdays \n\nSpring Session: March 31 – May 5\nSummer Session: June 23 – July 28\nFall Session: September 15 – October 20\n\nTime: 6pm – 7:30pm\n\nFacilitator(s): Easton Stevenson\, LCSW\n \nRSVP: Please RSVP here. \n*Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*
URL:https://es.lesturnerals.org/event/moving-forward-after-loss-bereavement-group/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20220512T120000
DTEND;TZID=America/Chicago:20220512T133000
DTSTAMP:20220502T131256Z
CREATED:20220415T234603Z
LAST-MODIFIED:20220502T131256Z
UID:13046-1652356800-1652362200@es.lesturnerals.org
SUMMARY:May ALS Learning Series: Financial and Estate Planning for the ALS Community
DESCRIPTION:Financial and Estate Planning for the ALS Community – Thursday\, May 12\, 2022 from Noon to 2:00pm CT \nAbout the Program: \nThis webinar will guide people living with ALS and their loved ones through easy-to-understand actionable steps for securing a financial future and optimizing health care. A diagnosis of ALS makes planning for the future more important than ever. These discussions are not easy\, but taking the time to gather information and think about your values is a powerful gift for yourself and to your family. \nFinancial and Estate Planning for the ALS Community is an interactive webinar\, where you will have a chance to learn about important financial and legal issues to consider\, how to put plans in place\, and how to access legal and financial resources. By planning appropriately\, you can focus on living. \nTerry Savage is a nationally recognized expert and speaker on personal finance and Kerry Peck\, JD\, is an award-winning attorney and subject matter expert whose practice is focused on elder law and estate planning. \nThe topics covered include: \n\nDeveloping financial strategies to take control of your money\nBuilding a team of people for legal and financial assistance\nUnderstanding tax deductions and credits related to ALS care\nCaregiving costs\nEstate planning: wills\, trusts\, powers of attorney and health care documents\n\nThe webinar is a free\, public service of the Les Turner ALS Foundation. \nAbout the Speakers: \nTerry Savage\, The Money Lady® \nTerry Savage is a nationally recognized expert on personal finance\, the economy\, and the markets. She writes a weekly personal finance column syndicated in major newspapers by Tribune Content Agency. Terry Savage lost her friend and colleague Michael Falk to ALS in 2021. Click here to learn more about Terry Savage. \n \n  \nKerry R. Peck\, JD\, Peck Ritchey\, LLC \nKerry R. Peck is the managing partner of the Chicago law firm\, Peck Ritchey\, LLC. He is the past president of the 22\,000 member Chicago Bar Association.  The Illinois Supreme Court recently appointed Mr. Peck as the Chair of the newly created Supreme Court Commission on Elder Law. He is an author and expert in estate and care planning that helps families plan and navigate through complex legal\, medical\, and financial decisions. Click here to learn more about Kerry R. Peck. \nRegister here
URL:https://es.lesturnerals.org/event/may-als-learning-series-financial-and-estate-planning-for-the-als-community/
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BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20220521T080000
DTEND;TZID=America/Chicago:20220521T170000
DTSTAMP:20220422T153751Z
CREATED:20220422T153751Z
LAST-MODIFIED:20220422T153751Z
UID:13071-1653120000-1653152400@es.lesturnerals.org
SUMMARY:21st Annual Lew Blond Run
DESCRIPTION:The 21st Annual Lew Blond Memorial 5K Run/Walk\, 1 Mile Run will take place on Saturday\, May 21 at Maple School\, 2370 Shermer Road\, Northbrook\, IL. The 5K takes place at 8:00 am. The 1 Mile Run begins at 9:00 a.m.\, and the new Little Lew 50-yard dash (for ages 6 and under) begins at 9:30 a.m. This year other new additions to the event include an online silent auction and a «Smile Mile» at Mile 2\, sponsored by Dentistry For Kids\, Ltd.\, where a photographer will be taking photos and post them on the Lew Blond Run’s Instagram. \nDistrict 30 has collaborated with the Lew Blond Memorial 5K Organization\, a non-profit organization\, to host the 5K and 1 mile run for the past 20 years. The Lew Blond Memorial 5K Run/Walk is held to honor Lew Blond\, a Maple School teacher who passed away from Lou Gehrig’s Disease (ALS) in February 2000. He was an exceptional and dedicated educator of the applied arts and was revered and cherished by his students\, his colleagues\, and the parents of the children he served. Lew Blond’s family has attended and helped support this race since its inception. \nThe Lew Blond Run Board of Directors appreciates everyone’s continued support of this fundraising event\, which benefits ALS (Lou Gehrig’s Disease) research through the Les Turner ALS Foundation\, supports high school scholarships at Glenbrook North and Glenbrook South High Schools\, and special District 30 projects. To date 40 scholarships have been awarded\, which helps support the students’ education and brings honor to the memory of Mr. Blond. \nSign up for the Lew Blond Run by April 30 to be guaranteed a t-shirt! \nVolunteers are also still needed for the Lew Blond Run. Contact Samuel Kurz at Skurtz@district30.org
URL:https://es.lesturnerals.org/event/21st-annual-lew-blond-run/
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BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20220521T180000
DTEND;TZID=America/Chicago:20220521T230000
DTSTAMP:20220131T185525Z
CREATED:20220131T151437Z
LAST-MODIFIED:20220131T185525Z
UID:12402-1653156000-1653174000@es.lesturnerals.org
SUMMARY:Hope Through Caring Gala
DESCRIPTION:Every Spring\, the Foundation hosts the Hope Through Caring Gala. The annual event celebrates the work of the Les Turner ALS Foundation\, Chicagoland’s leader in comprehensive ALS care\, and honors two incredible individuals for their significant contributions to the Foundation and the greater ALS community. \nThis year we are excited to announce the Hope Through Caring Award will be given to Lisa F. Wolfe\, MD\, of Northwestern Medicine. Dr. Wolfe is a world-renowned pulmonologist at our Lois Insolia ALS Clinic at the Les Turner ALS Center who has built one of most respected neuromuscular pulmonary programs in the country. \nIn addition\, the Harvey and Bonny Gaffen Advancements in ALS Award will be given to the co-founders of Amylyx Pharmaceuticals\, Joshua Cohen and Justin Klee\, for their unwavering commitment to the ALS community which began when they were undergraduates at Brown University. \n\n\n\n2022 Hope Through Caring Gala\nSaturday\, May 21\, 2022\nRadisson Blu Aqua Hotel\, Chicago \nVisit hopethroughcaring.org to purchase tickets and for more information. \nPlease contact Kim Kempf at kkempf@es.lesturnerals.org or 847-745-6024 for more information.
URL:https://es.lesturnerals.org/event/hope-through-caring-gala-2/
LOCATION:Radisson Blu\, 221 N Columbus Drive\, Chicago\, 60601\, United States
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BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20220623T120000
DTEND;TZID=America/Chicago:20220623T130000
DTSTAMP:20220524T195436Z
CREATED:20220524T195436Z
LAST-MODIFIED:20220524T195436Z
UID:13198-1655985600-1655989200@es.lesturnerals.org
SUMMARY:June ALS Learning Series: An Overview of Medicare for People Living with ALS
DESCRIPTION:About the Program \nMany people living with ALS qualify for Medicare to provide their health insurance after they are no longer working full-time. This presentation will examine Medicare eligibility\, enrollment\, coverage\, costs\, assistance paying for costs\, and considerations when choosing between traditional Medicare and a private Medicare advantage plan. Questions\, answers and discussion will follow the program. \nThe webinar is a free\, public service of the Les Turner ALS Foundation. \nAbout the Speaker \nKathleen Holt\, JD\, joined the Center for Medicare Advocacy in 2014 as Associate Director and attorney. In addition to her law practice\, she is an experienced hospital administrator with an MBA in healthcare management. After obtaining her law degree\, Kathy became a Special Assistant U.S. Attorney for Social Security and the U.S. Department of Health and Human Services in Seattle. Following the birth of her profoundly disabled youngest child\, she founded a Seattle area law practice advocating for the needs of older and disabled people. \nAfter the ALS diagnosis of a close friend in 1991\, Kathy served as President of the Board of both the ALS Association Evergreen Chapter (Washington\, Idaho\, Montana and Alaska) and subsequently\, the Connecticut Chapter. She was also a national ALS Association Trustee. She currently serves on the Boards of Team Gleason\, Yale-New Haven Health System’s Lawrence + Memorial Hospital\, the Connecticut Teacher’s Retirement Board\, and the Mansfield Connecticut Housing Authority. \nRegister
URL:https://es.lesturnerals.org/event/june-als-learning-series-an-overview-of-medicare-for-people-living-with-als/
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BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20220623T180000
DTEND;TZID=America/Chicago:20220623T193000
DTSTAMP:20220302T222457Z
CREATED:20220225T180353Z
LAST-MODIFIED:20220302T222457Z
UID:12528-1656007200-1656012600@es.lesturnerals.org
SUMMARY:Moving Forward After Loss (Bereavement Group) - Summer Session
DESCRIPTION:A closed\, 6 week therapeutic bereavement group for spouses or partners of people who have died from ALS within the past six to nine months. This group provides support\, validation\, and education in a supportive setting to those who are grieving the loss of their loved one. \nDate: Thursdays \n\nSpring Session: March 31 – May 5\nSummer Session: June 23 – July 28\nFall Session: September 15 – October 20\n\nTime: 6pm – 7:30pm\n\nFacilitator(s): Easton Stevenson\, LCSW\n \nRSVP: Please RSVP here. \n*Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*
URL:https://es.lesturnerals.org/event/moving-forward-after-loss-bereavement-group-2/
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BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20220714T120000
DTEND;TZID=America/Chicago:20220714T130000
DTSTAMP:20220616T195741Z
CREATED:20220616T195741Z
LAST-MODIFIED:20220616T195741Z
UID:13309-1657800000-1657803600@es.lesturnerals.org
SUMMARY:July ALS Learning Series: Complementary and Alternative Therapies for People Living with ALS and Caregivers
DESCRIPTION:About the Program \nIntegrative holistic therapies can play a major role in helping patients feel better\, especially when they are dealing with chronic neurologic diseases. Dr. Tavee will discuss how people living with ALS and their caregivers can benefit from nutrition\, exercise\, and mind-body therapies. Questions\, answers\, and discussions will follow the program. \nThe Les Turner ALS Foundation is proud to offer this webinar at not cost to the ALS community. Thank you to Mitsubishi Tanabe Pharma America and Cytokinetics for sponsoring this webinar. \nAbout the Speaker \nJinny Tavee\, MD\, is the Chief\, Division of Neurology\, Department of Medicine at National Jewish Health. Dr. Tavee has a special interest in integrative holistic medicine and teaches meditation to medical students\, patients\, and physicians from all over the world. She is actively involved in researching the effects of meditation on chronic neurologic diseases and has led meditation retreats for cancer survivors and injured U.S. Marines returning from the Gulf War through the Wounded Warriors program. She has recently completed a clinical trial evaluating the use of yoga breathing for people living with ALS. \nRegister
URL:https://es.lesturnerals.org/event/july-als-learning-series-complementary-and-alternative-therapies-for-people-living-with-als-and-caregivers/
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BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20220721T184500
DTEND;TZID=America/Chicago:20220721T200000
DTSTAMP:20220621T181208Z
CREATED:20220621T181208Z
LAST-MODIFIED:20220621T181208Z
UID:13317-1658429100-1658433600@es.lesturnerals.org
SUMMARY:2022 Strike Out ALS 5k & 1 Mile Run\, Walk & Roll
DESCRIPTION:We race towards more than a finish line\, we race towards a CURE. \nJoin us for this year’s Strike Out ALS 5k and 1 Mile Run\, Walk & Roll which will be held in-person at Guaranteed Rate Field on Thursday\, July 21\, 2022. \nRegister today!
URL:https://es.lesturnerals.org/event/2022-strike-out-als-5k-1-mile-run-walk-roll/
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BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20220811T090000
DTEND;TZID=America/Chicago:20220811T200000
DTSTAMP:20220318T195816Z
CREATED:20220318T195816Z
LAST-MODIFIED:20220318T195816Z
UID:12919-1660208400-1660248000@es.lesturnerals.org
SUMMARY:2022 Matt Creen Golf Invitational
DESCRIPTION:9th Annual\nMatt Creen Golf Invitational\nThursday\, August 11\, 2022 \nOdyssey Country Club\n19110 S Ridgeland Ave\nTinley Park\, IL 60477 \nRegistration and Driving Range: 9 am\nShotgun Start: 10:45 am\nOpen Bar: 4-8 pm\nDinner: 5:30 pm\nSilent Auction and Raffle Throughout Dinner \nMatt Creen\, General Counsel for the Currie Motors Group for 20 years\, was diagnosed with ALS in November of 2013. This is now our Ninth Annual Matt Creen Invitational for the benefit of the Les Turner ALS Foundation. With the help of his strong faith in God\, and the support of his family and friends\, Matt has maintained a positive outlook over the years since his diagnosis and has been an inspiration to all of us. \nMatt was both honored and humbled to receive the Hope Through Caring Award at the 2020 Hope Through Caring Gala hosted by the Les Turner ALS Foundation. Matt received this award in part as a result of the generosity of those who have attended this event over the years\, which has now raised over a half-million dollars for the Foundation. These dollars help the Foundation’s mission to create a world without ALS. On behalf of Matt\, the Creen family and the Les Turner ALS Foundation\, we look forward to another successful day for the Foundation with your continued generosity and support. \nEveryone\, whether golfing or not\, is invited to join Matt\, his family\, friends and colleagues for a fun-filled and inspirational day\, with plenty of great food\, cold drinks and camaraderie. \nWe look forward to seeing you! You can donate and purchase tickets here. \nThank you\,\nMark Vilimek\, Mike Payne\, Jim Bolek\, Tim Holder\, Michael Bruno\, Robert Alfaro and The Creen Family \n  \nIf mailing in a paper registration/donation form and paying by check\, please specify the event name and registration type on the memo line (i.e. Matt Creen Golfer Registration). Checks can be mailed to: \nLes Turner ALS Foundation\n5550 W Touhy Avenue\, Suite 302\nSkokie\, IL 60077\nReference: Matt Creen Golf Invitational
URL:https://es.lesturnerals.org/event/2022-matt-creen-golf-invitational/
LOCATION:The Odyssey\, 19110 S Ridgeland Ave\, Tinley Park \, IL\, 60477\, United States
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