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X-WR-CALDESC:Eventos para Les Turner ALS Foundation
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SUMMARY:January ALS Learning Series: Why Your Participation in the National ALS Registry Matters
DESCRIPTION:About the Program \nJoin us for our January ALS Learning series with Dr. Paul Mehta to learn how the National ALS Registry helps advance research. Dr. Mehta will discuss how to join the National ALS Registry\, what information they collect and why\, and the type of research the registry is conducting.  A Q&A session will follow the discussion. \nALS research depends on people living with ALS to join the National ALS Registry. Every individual’s story can contribute to our understanding of the disease\, its causes\, and how to fight it. \nThe Les Turner ALS Foundation is proud to offer this webinar at no cost to the ALS community. Thank you to Mitsubishi Tanabe Pharma America for sponsoring this webinar. \nAbout the Speaker \nDr. Paul Mehta is the principal investigator for the U.S. Congressionally mandated National Amyotrophic Lateral Sclerosis (ALS) Registry which is part of the CDC. Since 2013\, Dr. Mehta has been responsible for providing medical\, scientific\, and epidemiological expertise on matters related to ALS. Prior to joining the Agency for Toxic Substances and Disease Registry (ATSDR)\, he was responsible for overseeing external research initiatives for the National Center for Environmental Health (NCEH) and ATSDR. doctor of medicine (MD) from Fatima Medical Science Foundation and bachelor of arts in biology from the University of Toledo.  \nRegister
URL:https://es.lesturnerals.org/event/january-als-learning-series-why-your-participation-in-the-national-als-registry-matters/
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DTSTART;TZID=America/Chicago:20210819T150000
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DTSTAMP:20260421T110635
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LAST-MODIFIED:20230504T200037Z
UID:11181-1629385200-1629388800@es.lesturnerals.org
SUMMARY:Caregivers-Only Support Group
DESCRIPTION:The Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental\, accepting atmosphere without their loved one\, who is living with ALS\, being present. Caregivers share a common experience; life has become so tumultuous that they often feel exhausted and overwhelmed\, hungry for emotional comfort. Together\, with the guidance and encouragement of a devoted facilitator\, caregivers can find the strength to persevere. And\, by feeling heard and understood\, caregivers become more equipped to face another day with new coping strategies. \nTime: Meets the Third Thursday of each month from 3pm to 4pm \nFacilitator: Anne Lidsky\, PhD \nRSVP: Please RSVP here. \n*Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*
URL:https://es.lesturnerals.org/event/caregivers-only-support-group-thursday/
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DTSTART;TZID=America/Chicago:20230119T180000
DTEND;TZID=America/Chicago:20230119T193000
DTSTAMP:20260421T110635
CREATED:20221219T155432Z
LAST-MODIFIED:20230127T164645Z
UID:15642-1674151200-1674156600@es.lesturnerals.org
SUMMARY:Moving Forward After Loss - Spousal/ Partner Bereavement Group
DESCRIPTION:An open\, supportive monthly bereavement group for spouses/partners who have lost a loved one to ALS within the past year. This group will provide a place to connect with others who have experienced the loss of a loved one to ALS; stories will be told\, feelings will be explored\, and information will be shared about how to remain connected to the memory of a loved one. \nDate: Thursday \nTime: Select Thursdays Through March 2nd 6pm – 7:30 pm \nFacilitator(s): Easton Stevenson\, LCSW\n \nRSVP: Please RSVP here. \n*Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*
URL:https://es.lesturnerals.org/event/moving-forward-after-loss-bereavement-group-3/
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