BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//Les Turner ALS Foundation - ECPv6.15.20//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-ORIGINAL-URL:https://es.lesturnerals.org
X-WR-CALDESC:Eventos para Les Turner ALS Foundation
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:America/Chicago
BEGIN:DAYLIGHT
TZOFFSETFROM:-0600
TZOFFSETTO:-0500
TZNAME:CDT
DTSTART:20200308T080000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0500
TZOFFSETTO:-0600
TZNAME:CST
DTSTART:20201101T070000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0600
TZOFFSETTO:-0500
TZNAME:CDT
DTSTART:20210314T080000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0500
TZOFFSETTO:-0600
TZNAME:CST
DTSTART:20211107T070000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0600
TZOFFSETTO:-0500
TZNAME:CDT
DTSTART:20220313T080000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0500
TZOFFSETTO:-0600
TZNAME:CST
DTSTART:20221106T070000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20211216T120000
DTEND;TZID=America/Chicago:20211216T130000
DTSTAMP:20260422T025615
CREATED:20211118T161328Z
LAST-MODIFIED:20211118T161328Z
UID:12085-1639656000-1639659600@es.lesturnerals.org
SUMMARY:ALS Learning Series: Introducing My ALS Decision ToolTM - Empowering You to Take Control of Your ALS Care
DESCRIPTION:About the Program: \nMy ALS Decision Tool™ was developed in collaboration with people living with ALS\, caregivers\, advocates\, researchers and clinicians. This groundbreaking decision tool is a web-based\, interactive series of questions and considerations which can help you take control of your ALS care. Currently\, My ALS Decision ToolTM includes two modules\, breathing and nutrition\, the two issues of most significant concern to people living with ALS. \nBy attending the webinar\, you will learn how to use My ALS Decision ToolTM to EXPLORE quality-of-life considerations\, REVIEW treatment options\, and PREPARE for conversations with your doctors. Lauren Webb\, LCSW\, Director of Support Services and Education\, will also discuss the development of My ALS Decision ToolTM as well as the benefit of shared decision-making tools to improve health outcomes. People struggling to make decisions about their own ALS care will find this information to be helpful and empowering. \nBoth the webinar and My ALS Decision ToolTM are a free\, public service of the Les Turner ALS Foundation. \nAbout the Speaker: \n \nLauren Webb\, LCSW\, Director of Support Services and Education\, joined the Les Turner ALS Foundation in 2019.  She has worked in the neuromuscular community for 20 years—providing direct patient care for individuals with ALS\, working for a neurological specialty reference laboratory\, coordinating clinical trials at Ann and Robert H. Lurie Children’s Hospital of Chicago and overseeing the Muscular Dystrophy Association’s nationwide Care Center Network. She has a master’s degree in social work with a concentration in health administration and policy from the University of Chicago. Lauren is a devoted advocate who approaches people and problems with humility\, curiosity and humor. \nRegister here
URL:https://es.lesturnerals.org/event/als-learning-series-introducing-my-als-decision-tooltm-empowering-you-to-take-control-of-your-als-care/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20210819T150000
DTEND;TZID=America/Chicago:20210819T160000
DTSTAMP:20260422T025615
CREATED:20210817T021756Z
LAST-MODIFIED:20230504T200037Z
UID:11181-1629385200-1629388800@es.lesturnerals.org
SUMMARY:Caregivers-Only Support Group
DESCRIPTION:The Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental\, accepting atmosphere without their loved one\, who is living with ALS\, being present. Caregivers share a common experience; life has become so tumultuous that they often feel exhausted and overwhelmed\, hungry for emotional comfort. Together\, with the guidance and encouragement of a devoted facilitator\, caregivers can find the strength to persevere. And\, by feeling heard and understood\, caregivers become more equipped to face another day with new coping strategies. \nTime: Meets the Third Thursday of each month from 3pm to 4pm \nFacilitator: Anne Lidsky\, PhD \nRSVP: Please RSVP here. \n*Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*
URL:https://es.lesturnerals.org/event/caregivers-only-support-group-thursday/
END:VEVENT
END:VCALENDAR